Category Archives: Uncategorized

Advocating For Your Loved One: Eight Practical Suggestions.

Caregiver Me

How often have you noticed something that needs to be addressed in order for your loved one to have the best care? Probably almost as often you have felt mentally, emotionally and physically exhausted.   

The key to dealing with these situations is to be prepared, to be as informed as possible. Armed with the relevant information you will feel empowered and confident. 

These eight practical suggestions will ensure quick access to the records you need to be effective in your dealings with medical professionals and bureaucrats when issues arise.

1.  At every appointment, take notes and always date them.   

  • Be sure to include a list of all participants. At meetings with medical practitioners ensure that you record key terminology and associated terms, and any recommendations that are made. This applies not only to specific medical concerns but also to diagnosis and treatment options.  I kept these notes in one…

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Aspies: Five Ways To Lower Anxiety

What is the difference between anxiety and fear?  I’ve heard it said that fear is a specific dread–for instance, you might be afraid of the man next door because you have heard he’s a pervert or because he always looks angry.

Anxiety on the other hand is the dread you experience but can’t explain.  You might be having fearful feelings but not be able to say why.  This is very challenging because not knowing where the fear comes from, means you have no way to face down the fear.

But relax.  There is help.  And I know we’ve talked about this before, but with more than fifty percent of 100,000 college students* rating anxiety as their biggest issue when visiting a campus clinic, and the Canadian Anxiety Disorder Association stating that anxiety is now the number one mental health problem in Canada, this information bears repeating.

So here is help:  Five ways to fight anxiety and come out a winner.

  1. At the end of each day, think of three things that went right.  Focus your thoughts on those incidents.  Did you hand a report in, and get a good mark?  Did someone compliment you?  Did you finally make that phone call you’ve been dreading to make? Did you balance your budget?  Smile at someone who smiled back at you?  How did you make these things happen?

    For more on the power of positive thinking from Michigan University see:  https://www.uofmhealth.org/node/651843

  2. Be grateful.  Think about something you have–your health, your living space, your cat,–and be thankful for it.  It can be something as simple as a beautiful day, or rain for your garden or the sun on your face.  Feeling and expressing gratitude leads to reduced anxiety.  For more information about this topic see:  https://www.bphope.com/bipolar-buzz/10-ways-to-use-the-power-of-gratitude-to-help-depression-anxiety/

  3. Be kind.  Doing a good deed doesn’t just lift the spirits of the recipient of your kindness; it somehow magically transforms something inside of us to a good emotion.  And here’s the great thing–it doesn’t matter if you save someone from getting hit by a train (very anxiety producing in itself!) or if you just say hello to the lonely senior living down the street–it’s all powerful anti-anxiety medicine.

    To learn more see: https://www.springer.com/gp/about-springer/media/research-news/all-english-research-news/doing-good-deeds-helps-socially-anxious-people-relax/679444

  4. Volunteer: think of some charity you’d like to lend a helping hand to, then go and sign up as a volunteer.  You’ll meet people with similar interests, see that you are better off than some people, and possibly make new friends.  At the very least you’ll have social contact and feel productive.

  5. Be compassionate to yourself.  Forgive yourself your blunders. Tell yourself you’ve learned something from that embarrassing situation and will do better next time.  try to see the humour in it, and understand that you are loveable, you are unique and you are worthy of happiness.

    *From a Penn State University study.  Read more at:  http://news.psu.edu/story/343727/2015/02/05/research/annual-report-offers-snapshot-us-college-students%E2%80%99-mental-health

 

Margaret Jean

What is the difference between anxiety and fear?  I’ve heard it said that fear is a specific dread–for instance, you might be afraid of the man next door because you have heard he’s a pervert or because he always looks angry.

Anxiety on the other hand is the dread you experience but can’t explain.  You might be having fearful feelings but not be able to say why.  This is very challenging because not knowing where the fear comes from, means you have no way to face down the fear.

But relax.  There is help.  And I know we’ve talked about this before, but with more than fifty percent of 100,000 college students* rating anxiety as their biggest issue when visiting a campus clinic, and the Canadian Anxiety Disorder Association stating that anxiety is now the number one mental health problem in Canada, this information bears repeating.

So here is help:  Five ways…

View original post 321 more words

As Aspies our Difference is our Strength

There is an Unrecognized Strength in the ways we are Different … one which may lead us toward Unique and Rewarding Opportunities!

“I wish I wasn’t different,” My grandson said recently at a family gathering, reflecting on a  mean comment in his school year book.

As Aspies, we often feel we are seen as different: not the norm, whatever ‘normal’ is.

This can make us feel isolated from many, if not most of our peers. 

But cheer up! Being different also means we have a unique perspective.  And seeing things from an uncommon viewpoint is not all bad.

For instance, say a number of people see a couple taking the legs off a table in order to fit it into their car. 

If you’re a car salesman, you might think “They need a bigger car.”

Or a practical person might think, “They could have bought a smaller table.”

Someone who hates a hassle, may well think, “Why didn’t they just have it delivered?”

Ingvar Kampar, a dyslexic seventeen-year-old Swedish teen  was certainly not ‘disadvantaged’ by being ‘different’ when he observed the above event. He recognized a unique marketing opportunity: one that would make him a billionaire.

His thought?  If the table was sold in pieces packaged in a flat box it would easily fit into most cars.  Customers could then assemble it at their leisure, saving them the hassle of first breaking it down, or alternately, the cost of delivery.

He further realized that supplying numerous large goods in this manner would reduce the costs of production by reducing expenses associated with assembly, at the same time greatly reducing the volume and therefore the cost of warehouse space.  In addition, the need for delivery and the extra cost to the consumer for this service would be eliminated.

In effect, Kampar’s vision was of a production/retail experience that would be cost efficient for both the producer and the customer.

Thus, IKEA was born.

So, as Aspies we must not be dismayed if our thinking is ‘outside the box’.  Our differences can lead us to a unique vision that may result in desirable innovative advances and a successful career.

To learn more about Ingvar Kampar and his unique marketing system, see Youngme Moon’s book, Different.

For us Aspies, that title says it all.

Yours truly,

Margaret Jean

P.S. Other books on having a unique perspective: 

The Power of Different, The Link Between Disorder and Genius by Gail Saltz

Be Different, Adventures of A Free-range Aspergian : With Practical Advice for Aspergians, Misfits, Families & Teachers by John Elder Robison.

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To Everyone Who “Can’t Meditate”

Neurodivergent Rebel

Mindfulness and meditation have been a big part of my life for several years now. I’m always happy to share with people how helpful meditation is for me.

Unfortunately almost everyone I talk to about meditation “can’t meditate”.

“I wish I could meditate. My mind isn’t made for that!” or “I can’t stand being still”, a few of the most common excuses why people tell me they “can’t meditate”.

People assume meditation was always easy for me, while in reality, nothing could be further from the truth.

I started meditation because of a deep internal need for change.

My twenty-fifth birthday was coming at me like an out of control locomotive with a sleeping driver. The number made me uneasy and it was coming too fast. Like a doe, hypnotized by the headlights, I felt helpless to stop it.

Something was wrong, missing, empty and completely inexpressible. I’d been searching…

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Aspies: Having a Purpose–Key to Health and Happiness?

In my book, Unforgiving, Memoir of an Asperger Teen, I show the vividness of life when purpose is found and pursued, and the sense of disconnection a teen has when that purpose is lost.

And if you ask some Aspies, they will tell you the thing they know most about happiness, is how elusive it is.

Having a purpose can change that.  It will not only fuel your passion and get you out in the world doing something meaningful, “Purpose” also, according to Dr. Patricia A. Boyle PhD, a neuropsychologist with the Rush Alzheimer’s Disease Center, “somehow gives your brain resilience”.

And according to another study by cardiologist Randy Cohen of St. Lukes-Roosevelt Hospital in New York, Purpose can protect your heart health and contribute to your longevity.

So what is “Purpose” and how do you find it?  One thing at least two people agree on, is that action is the key.

Passion plus Daily Action Equals a Purposeful Life” writes author Shannon Kaiser in her article Three Unexpected Ways to Find Purpose.

In Mark Manson’s article, Seven Strange Questions that Help You Find Your Life Purpose,  he states important truths about purpose-finding.  “Get off your ass and discover what feels important to you,” Manson directs, adding:  “Embrace embarrassment.”  and “Everything sucks some of the time.”

Like Kaiser, Manson insists “Passion is the result of action, not the cause of it.”

Want to live longer, have a healthier heart and brain and do something you actually love?  First you have to find out what that is.  These authors give you fuel for the journey.

Read Manson’s article at: https://markmanson.net/life-purpose

Kaiser’s at:

http://www.huffingtonpost.com/shannon-kaiser/3-unexpected-ways-to-find_b_5176511.html

and discover research facts about health and purpose at:

http://www.everydayhealth.com/news/purpose-life-good-your-health/

Asperger’s: Help For Social Encounters.

Isn’t that video helpful for overcoming social anxiety?

You know, no matter how many successful social encounters I have, it seems the ones the Asperger’s ones that don’t go well are the ones that linger ghost-like in my mind, haunting me.

Recently I had an encounter where my aim was to convey care and concern for someone.  I totally missed the mark.

Instead of greeting that person in a pleasant way  to set them at ease, I began with the imperative  We have to talk!

Then, instead of asking how they were or how things were going for them, I launched into a prepared speech!

The target of my concern (and target is a most appropriate term) looked at me as if I were some alien being suddenly projected into the time and space slot before them.

Stunned and confused, possibly even hurt by my well-meaning verbal tackle, they said something abrupt and walked away.

Of course I immediately reviewed all the errors in my approach, feeling an absolute idiot. But then I remembered my advice to all of my fellow Aspies: have compassion for yourself.

I tried, but for the next few weeks, I shuddered each time I recalled the non-conversation.

However, I was redeemed.  When my birthday came along several weeks later, that same person left flowers on my door.  So I guess he got the message regardless of my delivery system.

Take heart, Aspies!  Sometimes our not-so-socially-correct way of communicating still manages to connect.

Yours truly,

Margaret Jean.

 

 

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The Start of Something New

Guest Blog:

Paisley’s blog is a great example of having compassion for yourself. I love how she’s embracing her issues instead of trying to just make them go away! We’ll be following your blog, Paisley.

The Over Thinker

IMG_6433 Thumbs up to me for my first post!

My name is Paisley, I’m a 19 year old student from Ontario, Canada and I have severe anxiety. My whole life I’ve been trying not to let my anxiety define me, but it recently occurred to me that after 19 years of trying to make this thing go away, it won’t. So why not embrace it? That seems to be a trend lately anyways, embracing past tragedies, scars, and physical illnesses, so why shouldn’t we start embracing our mental illness as well?

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The Canadian Autism Partnership: a website to remember.

In my book, Unforgiving, Memoir of an Asperger Teen, I note that Autism wasn’t really a concern until the late 1980’s.  How wonderful it would have been if my parents and teachers (and I!) could have taken a survey like this one.

I received this survey request from the Autism Society of BC.  The Canadian Autism Partnership Project (CAPP) would like all Canadian persons with or dealing with Autism Spectrum in their family, social or professional life to take the CAP survey.

The purpose of the survey is to assist in identifying programs and services that are currently effective and those that are lacking.  Sounds like a good idea, does it not?

The proposed vision of the Canadian Autism Partnership is:

All Canadians living with autism have the opportunity to lead fulfilling and rewarding lives. This means that they are able to access the necessary supports and services in a welcoming and understanding society. 

The proposed mandate of the Canadian Autism Partnership is:

To mobilize partners across sectors on a national level to accelerate innovation and action to address complex issues affecting Canadians living with Autism.

The proposed foundational statement for the Canadian Autism Partnership is:

Canadians living with autism have the right to:

  • ·        inclusion,

  • ·        understanding and acceptance,

  • ·        respect and dignity,

  • ·        full citizenship,

  • ·        equitable opportunities and access,

  • ·        personal autonomy, and

  • ·        decision-making.

The national ASD working group has identified the following areas of focus for the Canadian Autism Partnership:

  • ·        Early detection and diagnosis

  • ·        Treatment and support across the lifespan

  • ·        Education, training and awareness

  • ·        Attachment to the labour force

  • ·        Community living (includes recreation, leisure and housing)

  • ·        Impact on caregivers (includes health, mental health, respite, and senior issues)

  • ·        Research

To take the survey go to:  www.capproject.ca

To view their website, go to: http://www.capproject.ca/index.php/en/

I know I can count on you!

Yours truly,

Margaret Jean.

An Aspie’s Easter: Ritual

Some of you may be somewhat familiar with my paternal Grandmother from reading Unforgiving, Memoir of an Asperger Teen.  Well, every Easter up until I was eleven years old, my grandmother bought me a complete outfit.  I can only remember one of these: a light aqua terylene dress, with white collar, white gloves and white shoes.

Do you have a favorite memory of Easter?  Or maybe there’s new traditions you’re starting now. I’d be interested in hearing some of them.

Easter Sunday was special in those days.  Women wore their very best outfits, including a new hat.  I loved to go to church and see the pretty Spring colours.  The black and navy of winter was gone, and the women brought out the sunnier summer palette.

For me, Easter Sunday still means dressing up.  I love laying out my clothes the night before, choosing the accessories that I’ll wear to accent the outfit I’ve chosen.

More and more I’ve become aware that it is a privilege to attend the church of our choice, and a privilege to worship. We still have that privilege; I like to enjoy it while I can.

After church there was always a big family dinner, sometimes with friends joining in.  Roast ham or chicken, the last of the root vegetables from the cold cellar, home made breads, and for dessert, home made apple pie (there was no other kind in the ancient days) and ice cream. A feast of celebration.!  Who would say no to that?

As an Aspie?  These rituals are precious events, imbued with memories of days past, traditions I never want to relinquish.

 

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