Monthly Archives: February 2021

On Being a Writer with Autism

It’s a problem.  Not just having Asperger’s or, as the more politically and diagnostically correct phrasing goes, being on the spectrum.  But also not being diagnosed.

I know I am autistic.  My oldest daughter and two of my grandsons have been diagnosed as being on the Spectrum and we process information in a similar fashion — although often arriving at very different conclusions. The way we observe and process information is generally considered to be ‘unusual’.

Being different can bring a sense of isolation.  For me, as a child, it began at home. 

None of my family questioned the things I questioned, or perceived certain aspects of home and the society in which we lived, in the way I viewed and interpreted them.  It made both myself, and my family think of me as ‘other’.  I lived there, but I was different.  Wrong.  I didn’t fit in. And I found myself in a very similar situation in school. 

I honestly would not be able to tell you how I was different from the other kids.  That was a secret only they knew. 

Not knowing how I was different made it impossible to adjust my behaviour to conform.

I loved my mother, but in my opinion she lived a very dull, uninteresting life and I was determined to not grow up to live a similar one.  On reflection, my mother faced a great many challenges.  Raising a family and working outside of the home in the 1950’s and 1960’s when women were bombarded with media messages that their place was at home, could not have been easy for her. But I was too young and too involved with my own dilemmas to truly understand hers.

Then, when I was eleven, a neighbour began to notice me.  An adult, he was a close family friend.  My dad, my grandmother and my aunts all liked him.  As he was frequently in our house, he found me an easy target for his perversion.  Familiar with our household routines, he could easily determine when I would be home alone and thus vulnerable.

My autism contributed to my sense of helplessness in dealing with this neighbour’s twisted mind. 

The isolation I felt from my parents, the sense of being ‘wrong’ and not knowing how I was wrong.  The strict rule in our house that adults were always to be obeyed … I couldn’t sort out how I was supposed to alert others to this situation.

When I made tentative inroads into conversations about this problem, as with every other serious conversation I tried to have with adults, I was shut out. 

It was the 1950’s.  No one wanted to hear ‘that kind of thing’.

And, no-one knew about Autism, other than Hans Asperger in Germany and a few of his cohorts. We didn’t know about stimming, the social skills deficit or the neurology that would have unveiled my condition.  So I stood alone.

 I have been criticized for writing about this period in my life as I experienced it, rather than focusing more narrowly upon my autism. 

The social deficits were, and to some extent still are, real and pervasive. The sense of isolation, the astounding lack of connection to others.  Pleasure in solitude.  The foreign-ness of other people’s thought processes.

I cannot make up autistic traits.  I was different.  Socially awkward, and a loner.   That’s my truth.

And as an author who is autistic, the truth is the most powerful narrative I can offer you in a memoir. 

The sometimes horrifying, sometimes touching and sometimes humourous truths about what it was like to be socially challenged in the late fifties, early sixties, attempting to ward off a sexual predator while trying my best to figure out how to be normal in a world that seemed so completely foreign to me, is my story of growing up on the spectrum.

Unforgiving. The Memoir of an Asperger Teen is available on Kindle and in paperback through Amazon Books.  Read for yourself.  I told my truth.

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PROMOTING THE AUTISTIC VOICE

 
 

Today is Valentine’s Day, a perfect day for Aspies everywhere to give themselves the gift of loving acceptance. 

Today is the day to discover that autists are making waves, promoting our Autistic voices by demanding that research begin to focus on the positive instead of the negative features of autism.  It is a day to recognize those individuals and organizations who are working toward changing the way that research into autism is conducted.

They are people like Vivian Ly[i], whose slogan is Nothing About Us Without Us.

Ly says that Applied Behavioural Analysis can be compared to autistic masking behaviours.  Her position is that people with autism need to be accepted as they are, and not programmed to fit into more societally acceptable ‘normal’ slots.  She is also outraged by researchers and organizations that attempt to speak for autistics.  We have voices.  We can speak for ourselves, Ly states.

Another autist, Kieran Rose, has along with Amy Pearson published a paper on why autists camouflage their behavior, and how harmful to the psyche this can be.  Published in the academic journal, Autism in Adulthood, Kieran’s article on masking analysis is free to read at the URL given below[ii].  He also has a blog, The Autistic Advocate, if you’d like to check it out.

Michelle Dawson[iii] is an autistic person who has fought both legal and academic battles for the rights of autistic people.  In spite of never attending university as a student, she has presented to and influenced decisions in the Supreme Court of Canada, worked with autism research teams at the University of Montreal and is cited in a considerable number of academic papers.  She has also received the Ordre de Montreal as a result of her consistent voice in advocating for the rights of autistic people. 

Dawson describes autism as a neurological difference in development, one which determines how we process information.  This atypical brain-routing results in behaviours and thinking that is different from the ‘neurotypical’.  Dawson presents these differences as strengths rather than as a negative stereotype.[iv]

It may also be helpful to note that online communities for Autists by Autists have been springing up all over. In Ontario, Canada, A4A (Autists for Autists).  In Western Canada, Autists United, and the Autism CRC Co-operative Research Centre whose vision is to see autists empowered in their diverse strengths and interests.

So look on the bright side. The world’s perception of those of us on the spectrum is slowly changing.  Thanks to the persistent lobbying of our fellow autists in promoting the recognition of our unique neurological processes, we are beginning to embrace who we are and how we process the world. More and more people, including those who are positioned in such a way that they can influence societal changes in attitude, understand and accept our condition.

They are fighting for us to be accepted as we are.

 That, surely is cause for a tremendous Valentine’s Day celebration!


[i] https://vancouversun.com/news/local-news/autistic-people-march-for-and-against-walk-for-autism-in-richmond

[ii] A critical analysis of Autistic Masking: Understanding the Narrative of Stigma and the Illusion of Choice.

[iii] https://ville.montreal.qc.ca/ordre/en/michelle-dawson

[iv] the autism crisis: science & ethics in the era of autism advocacy : What’s autism anyway?

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Writing on the Spectrum

Have you ever been bullied at school?  Teased in an unkind way?

Perhaps you tried to join in a conversation and the little knob of people you were addressing just kind of broke up and walked away. What does a person do with that?

For me, it became a memoir, a Kindle book called Unforgiving, Memoir of an Asperger’s Teen

I wrote about the incongruous juxtaposition of events in my teenaged life: the unpleasantness of being targeted by a child molester, dealing with an Asperger’s personality when no-one knew what that was, and getting the lead role in a National Film Board film.  Circumstances which in combination, isolated me from my family and my peers.  

My intention in writing this book was to illustrate how a series of events in a young teen’s life can create an overwhelming and pervasive sense of isolation from family and community.

Another Aspie, Tom Angleberger, has written an article on how Asperger’s powers his writing.  Angleberger is the author of a series of young adult books who uses unpleasant incidents from his school days as fodder for his plots.  Angleberger has published many books in which his knowledge of Star Wars along with embarrassing moments in his childhood create humorous adventures for his characters, always with positive conclusions.

Some of his titles include Darth Paper Strikes Back and Emperor Pickeltine Rides the Bus.  He combined his fascination with origami along with his love of writing to produce R2-D2’s Guide to Folding.  He currently has 52 books in print and nearly two hundred thousand reviews on Goodreads!

As for being autistic, Angleberger says the constant flow of words from his brain to his pen have helped him have a career he loves.

You can read more about this author at: https://origamiyoda.com/ or find his books on Amazon, or in bookstores.

That other autists like Kelly Brenner[i], a Seattle based naturalist who writes about urban nature, can become successful authors is not just a recent occurrence. A behavioral analysis site declares that historically, authors such as Emily Dickinson, Hans Christian Anderson and Lewis Carroll are thought to have been on the spectrum[ii].

 Interestingly, an American university research project published in July of 2020 indicated that autistic students out-performed their classmates in essay and project writing[iii]. The main issue for students with autism, the study findings suggest, is overcoming perfectionism.

Shauna Marie Henry[iv] writes to expose ‘the elephant in the room’.  She says having an Asperger’s viewpoint gives her stories a unique look at social conventions. 

For many of us, being an Aspie doesn’t smooth the pathway to a seamlessly successful social life.  At least not in our early lives.  But certain aspects of our condition, including our unique perceptions, our different ways of processing information, and our ability to find humour in the most socially disastrous circumstances, or even just to survive them, can be seen as positive attributes.  

For some, even fodder for a career we love. 


[i] https://www.theopennotebook.com/2018/10/09/writing-when-on-the-autism-spectrum/

[ii] https://www.appliedbehavioranalysisprograms.com/

[iii] Comparing the writing skills of autistic and nonautistic university students: A collaboration with autistic university students  Kristen Gillespie-LynchEmily HotezMatthew Zajic

[iv] https://writingcooperative.com/learning-to-write-with-aspergers-b1e0fe61b619

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