Category Archives: Autism Spectrum

An Aspie’s Easter: Ritual

Some of you may be somewhat familiar with my paternal Grandmother from reading Unforgiving, Memoir of an Asperger Teen.  Well, every Easter up until I was eleven years old, my grandmother bought me a complete outfit.  I can only remember one of these: a light aqua terylene dress, with white collar, white gloves and white shoes.

Do you have a favorite memory of Easter?  Or maybe there’s new traditions you’re starting now. I’d be interested in hearing some of them.

Easter Sunday was special in those days.  Women wore their very best outfits, including a new hat.  I loved to go to church and see the pretty Spring colours.  The black and navy of winter was gone, and the women brought out the sunnier summer palette.

For me, Easter Sunday still means dressing up.  I love laying out my clothes the night before, choosing the accessories that I’ll wear to accent the outfit I’ve chosen.

More and more I’ve become aware that it is a privilege to attend the church of our choice, and a privilege to worship. We still have that privilege; I like to enjoy it while I can.

After church there was always a big family dinner, sometimes with friends joining in.  Roast ham or chicken, the last of the root vegetables from the cold cellar, home made breads, and for dessert, home made apple pie (there was no other kind in the ancient days) and ice cream. A feast of celebration.!  Who would say no to that?

As an Aspie?  These rituals are precious events, imbued with memories of days past, traditions I never want to relinquish.

 

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Teen Aspie Activities That (Mostly) Don’t Involve Computers.

Is your child a science buff?  If so you likely don’t have a problem prying them away from computer games. Eighteen year old UBC student Ann Stasia Makosnski (not an Aspie to my knowledge) invented a flashlight that works off body heat and a coffee cup that uses the heat of the drink to charge our cell phone. If your child has ‘invention ideas’ encourage them.

Even if the first 500 ideas are flops, they are bound to succeed sooner or later.  Thomas Edison failed 10,000 times (I’ve successfully found 10,000 ways the light bulb will not work) and still became one of the most famous inventors of the 20th century.

Aspies like different ideas.  Here’s one: carry socks wherever you go.  Winter is very hard on homeless people. They often find themselves in below zero temperatures without socks, sometimes even without shoes.  Recently a spokesman for the Union Gospel Mission reccomended giving a nice warm pair of socks to a homeless person.  This suggests that you see them as a person, and empathize with their predicament.

Carrying new warm sox to give to homeless people could be a great way to change a trip to the grocery store or mall into a giving experience for your child.

Does your child frequently post on You Tube?  Alex Plank, an Aspie, developed a website, “Wrong Planet”  for teens with Asperger’s when he was just a teen.

This led Plank to pursue a career in film. He graduated from George Mason University with a degree in Film and Video Studies.  One of his current projects is Autism Talk TV which can be found at:http://wrongplanet.net/autism-talk-tv/.  Plank is currently a consultant for the TV series, The Bridge.

Does your child enjoy talking with older people?

Looking through our local community newspaper, I see that BC Care Providers Association is encouraging anyone who knows someone in a care facility to visit them.  This seems a reasonable activity for Asperger Teens, as they often communicate and get along better with adults than their peers.

Does your child have a special interest?

Let’s say his special interest lies in trains; it might be a good idea to introduce them to an association of people with similar interests, such as a railway model association.

Introduce the child to the association’s activities at a show or exhibition.  Research and explain how meetings are held, and attend with the child at first to help ease him into introductions and conversations.  If it’s a good fit, the child will then have social interaction with people who enjoy his special interest topic.

There are lots of ideas on creative ways to engage your child.  Not all of them involve the computer.

If you have ideas, I’d like to hear them.  Just email me at margaretjean64@gmail.com.

Yours truly,

Margaret Jean.

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2015 in review

The WordPress.com stats helper monkeys prepared a 2015 annual report for this blog.

Here’s an excerpt:

A San Francisco cable car holds 60 people. This blog was viewed about 960 times in 2015. If it were a cable car, it would take about 16 trips to carry that many people.

Click here to see the complete report.

Asperger’s Poetry!

Cameron

I think I’ll kill myself, he says, and start over.

He looks at me with world-weary eyes.
I despise the people who have made him feel so wrong.

He watches with interest as friends throng around his younger brother.
They hang out.  have fun.  He’s not sure just how that’s done.

Cameron doesn’t do his work, his teacher tells his mom.
He does the minimum, and when we ask for more, he refuses.
The fact is, in the classroom?  Your son does as he chooses.

His teachers want to increase his medication.
His Mom just wants him to get an education.

Did the teachers speak to Mrs. Einstein?
Madam, your son spends too much time gazing at outer space.
And when it comes to Mathematics, his work is a disgrace!

Or Leonardo’s Mom?
Mrs. da Vinci?  You’re Leo’s mom, right?  Well, he doodles all day.  Can’t keep his mind
On his work.  Draws ‘flying’ machines.  And (ahem) did you know he sketches nude men?

Or the mother of Microsoft:
Mrs. Gates, you’ll have to get a tutor to help Billy with his writing.
He’s fighting it. Says he’s going to build some computer: He will speak
and it will type.  You must get his mind off this tripe, Mrs. G.  Bring him
back to earth or he’ll never be worth anything.

I wonder what Mrs. G. might have had to say, how she and the other mothers
might have responded.  Cameron’s mom feels inadequate.  Anxious for her son.
Sometimes despondent.

He can’t pretend.  And anyway, it’s no use now.
Everyone knows he’s different somehow.
His mother tries to ease his pain.  His father’s gone.
Last week he promised to come round.  And didn’t.
Again.

Cameron has Asperger’s or PDD.  It’s a condition he lives with.
But Cameron has voiced what he perceives to be another choice:
I think I’ll kill myself, he said, and start this thing all over again.

He looks at me with world-weary eyes and I despise
the people who have made him feel this way
Because Cameron is my grandson and he’s
eight years old today.

M. J. Adam.

 

Asperger’s Quiz: Autism and Asperger’s.

As you know from my book, Unforgiving, Memoir of an Asperger Teen, nothing was known about Asperger’s when I was born into my parent’s life.  I thought it would be interesting to see what you readers know about Asperger’s and Autism, now that there is a wealth of information out there on the net.  So here’s your quiz:

  1. Asperger’s Syndrome was first described in:  a) 1984     b) 1957    c) 1940.
  2. Asperger’s Disorder first appeared in the APA’s Diagnostic and Statisical Manual of Mental Disorders (DSM IV) in what year?  a) 1984    b) 2003  c) 1994.
  3. The doctor who first described the symptoms was  a) Dr. Jonas Salk     b) Dr. Hans Asperger     c) Dr. Sigmund Freud.
  4. What differentiates Asperger’s from autism is currently thought to be:  a) Asperger’s is always accompanied by ADHD but autism isn’t    b) Autism exhibits delayed speech and more severe symptoms     c) Asperger’s kids never have OCD symptoms.
  5. Asperger syndrome kids may excel at memorizing but struggle with:  a) social skills     b) abstract concepts     c) understanding body language  d) all of the above.
  6. Children with Asperger’s often have a fairly large vocabulary and talk a lot on one topic that interest them.  True or False?
  7. Children with Asperger’s may have difficulty showing emotion or empathy.  This lack of facial response to events, conversations and people is often called a) facial paralysis    b) frozen mask     c) flat aspect.
  8. Children not on the Autism spectrum are referred to as: a) unlucky   b) outside the disorder   c) neurotypical.
  9. Facial recognition for children on the autism spectrum a) is difficult due to differences in neural development  b) hinders their ability to make and keep social contacts  c) all of the above.
  10. Can you name three Autism Societies currently operating in your area?

Except for number ten–which will vary depending on where you are, the answers will be posted next week.

Thanks for stopping by!

Margaret Jean.

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Autism Society BC Workshop in Burnaby–How to Help Your Child Be Successful in School.

https://www.youtube.com/watch?v=2TSlti5bioQ%5B/embed

My Book, Unforgiving, Memoir of an Asperger Teen, talks about a time when kids and parents alike had no idea about Asperger’s and there were no support groups.  Fortunately, that is no longer true today.

]The following is a notice from the Autism Society of BC about an October 16th lower mainland Workshop that will give you ways to help your child get organized at school:

ASBC Burnaby Support Group Meeting – Fri Oct 16th 10-12‏

Do you know what  Executive Function is and how it affects our planning, organizing, attending to the right information at the right time, making decision accordingly, flexibility…?

We are pleased to have Michele Shilvock, Behavior Consultant, to present the following workshop in our October meeting.  All are welcome.

 Our upcoming ASBC Burnaby Support Group meeting details:

Date: October 16, 2015 (Friday)

Time: 10:00 am to 12:00 noon

Place: Studio, Suite #301 – 3701 East Hastings, Burnaby BC (North East corner on Hastings and Boundary)

Directions:  Walk from north side on Hastings from Boundary towards east, past a mail box and a bus stop, look towards the building (Enterprise Centre), walk up a few steps to see a long flight of stairs at your left, walk up the stairs from G/F directly to 3/F (if you see 2/F it’s the wrong staircase).  Suite #301 is at your left.

Topic: Executive Function Skills and how these play out in the school (elementary and high school)

Executive function plays a key role in all students learning and specifically looks to target skills that help one decide on what information to attend to, how to interpret the information and ultimately make decisions based on it.  They allow a learner to organize, plan out, sustain attention and assist with task completion both in their social and academic worlds.  The focus of this presentation is to offer attendees a greater understanding for the different components of executive function and how children on the autism spectrum may be impacted by deficits in one or more areas, both in the elementary and high school settings.  Further more, strategies for how to improve in these areas will be discussed in a general format both for implementation in the home and school settings.

Speaker: Michele Shilvock, Behaviour Consultant, BCBA

Michele is a board certified behaviour analyst who has been working in the field of autism for over 15 years and brings with her a wealth of knowledge and a passion for wanting to work with others. She is very dedicated to the training of individuals in the community through workshops and speaking engagements.  She has and continues to work closely with families and school teams to assist in the facilitation of team oriented working relationships. Michele works closely with children in the home and school settings and has a keen interest in the social, emotional and executive function of individuals on the autism spectrum.  Her focus ranges from working with infants and toddlers, to supporting skill development through the preschool years and into adolescents and teen years.

 Coffee/tea and refreshments will be provided.

Hope you all can make it!

Yours truly,

Margaret Jean.

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Autism Spectrum Disorder: A Parent’s Guide

I’ve come across a terrific book for parents of children on the autism spectrum, or kids with Aspergers.  I wish my parents had it when I was growing up!  But as you’ve undoubtedly read in my book Unforgiving, Memoir of An Asperger Teen, in those days no such guide existed.

Today’s parents have a huge advantage in raising children on the spectrum.  There are many resources available now, and one of them is this book whcih combines the expertise of three PhD’s, Ozonoff, Dawson and McPartland, A Parent’s Guide to High Functioning Autism Disorder–How to Meet the Challenge & Help Your Child Thrive is informative to say the very least.

Published in 2013, the book discusses research and developments including significant changes from the Diagnostic & Statistical Manual of Mental Disorders IV (DSM-4)  and the current diagnostic manual–DSM 5. The authors specifically address how these differences may relate to your child’s diagnosis.

The book is divided into two sections:  Understanding High Functioning Autism Syndrome Disorder (A.S.D.)which includes history and diagnostic and research approaches, and Living With High Functioning A.S.D.

Both sections contain significant information on the syndrome itself as well as its various implications on the life of a child and their family.

While the book is obviously directed at the lay person, I would not say it is light reading.  Wisely, the authors use anecdotes from recent case histories to illustrate the application of much of the information.  These anecdotes along with some more personal notes make the book very readable.

The reference section alone, 15 pages of book titles, CDs and Websites is worth the price of the book.

All in all, its a great resource and I heartily recommend it for reference purposes.  Look for it in the bookstore, or in your local library.

Yours truly,

Margaret Jean.

 

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An Aspie Life: Questions Raised by Temple Grandin’s Example.

When I look at Temple Grandin’s life, I feel ashamed of how little I have accomplished.

Mostly all I’ve done is love someone and raise three children with a whole lot of cooking, washing, ironing and housecleaning in between.  I went to university late, earned a degree.  Wrote some books.  Started a Quilter’s guild.  It seems a minimal contribution at best.  But then I look at my three children and suddenly my life seems to have some significance.

Not that I take any credit for how wonderfully they turned out.  I know I was an inadequate parent.  I didn’t know about Asperger’s least of all that I had it, and so did my daughter and possibly my son.  Maybe we all did.  One daughter and two grandchildren diagnosed.  I am so proud of who they are today.  Fine people.  They have become my friends as well as my children.  We mentored each other along the way.  I was very young when I had them, you see, just eighteen when I had my first and when she was three, the youngest was born.  I was fertile if nothing else.

And because of my autism, my Asperger’s, I was socially very immature.  So we grew up together.  I helped them where I could.  And when they saw me stuck they’d step in and give me a nudge in the right direction.  I wasn’t mature for most of my first two marriages.  But in the third one I think I finally mastered at least some of the art of maturity.  Not that I’m anywhere near finished yet.

My children are independent, organized, kind, and intelligent.  I don’t know what more I could ask of them.

But of myself I have to ask this: what have I done to better the world I live in?

Offhand?  I don’t know the answer.  And that seems a sad thing.

Yours truly,

Margaret Jean.

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Aspies: Two Generations Can Have an Explosive Impact.

In a Psychology Today April 2013 article titled Father and Son, Aspies Alike author John Elder Robison describes the pitfalls of two generations under one roof having Aspergers.

His son, Jack, was fascinated by ‘energetic reactions’ in chemistry.  This meant that he liked building experimental things that depended on explosive reactions. Things like rockets. Other chemical formulations that he set to explode in the field behind their house.

John Robison knew that his son Jack was uploading instructional videos of his experiments to You Tube.  But it never occurred to him, as it might to some non-Aspie parents, that this might attract some undue attention.

In Jack’s case, it was the FBI FTA branch.

Jack was not charged with any offence and his brush with the law proved innocent enough.

But maybe it’s better when you’re seeking an outside opinion?  To ask someone who isn’t an Aspie.

John Robison’s books include Raising Cubby,  Be Different and Look Me In the Eye.  His son, Jack, along with Jack’s friends Alex Plank, founder of You Tube’s Wrong Planet, have created a series of videos about Autism issues.

Yours truly,

Margaret Jean.

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Grandin: Understanding Individual Brain Differences Can Help Control Behaviours

You really get Temple Grandin’s enthusiasm when she talks about brain differences.  Just knowing how your brain is unusual can help people with autism better understand and control their behaviours and emotions, Grandin says in her latest book, The Autistic Brain.

She gives the example of her own brain.  For instance, the amygdala is the part of the brain that processes emotions like fear.  Just so happens, Grandin’s amygdala is enlarged.  Since this is the part of the brain that signals the fear emotion, Grandin credits this brain anomaly with her hyper anxiety.

Because she now knows that her brain construction is probably responsible for her high levels of anxiety, she finds that anxiety easier to deal with.

Grandin gives the example of students talking  under her bedroom window at night.  This creates anxiety for her regardless of whether they are talking softly or loudly.

Knowing that this state of anxiety is not caused by any real threat, she can reassure herself that the problem is not outside;  the problem lies within her brain.

She can then deal with the fact that threat is not real.  What is real?  How she feels about it.  And that she can deal with.

 

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