Autism: Criticism and Self Doubt

Inez Garcia 1974

Growing up on the Autism spectrum, being constantly criticized for my behaviour, often justifiably so, created tremendous self-doubt.

This criticism made it easy for people to convince me that behaviour that I felt was entirely appropriate was in fact, unacceptable.

Lately, I’ve read James Clear’s Atomic Habits, in which he states that a habit he has ingrained is that he has to write every day.  He only has to write one line, but the habit he’s ingrained is, he has to write every day.  That, he says, is how he became a writer.

I was born a writer.

In my early teens I wrote poetry, the words flowing from an inner source that moved my pen across the page.  I could easily express emotion and lead my audience to exactly where I wanted to take them. 

People listened attentively and responded with enthusiasm.  For me, it was as natural as breathing.

Then I bound myself into a relationship with a much older man.  A well-educated man who had studied the classics and philosophy. A man raised in an atmosphere of Emily Post’s Blue Book of Etiquette. A man who denigrated my writing.

One day, in a passionate sense of injustice I wrote poetically about an incident that I heard about in the news. 

The news article featured a woman of strong character–Inez Garcia. A woman who was raped. Two men assaulted her, one of whom weighed over three hundred pounds.  He held her down, while the other man raped her.  When they were done, they let her go.  Threats against her life were uttered.  Incensed and traumatized, she went home. She grabbed her son’s gun. She hunted one man down. Shot and killed him. The other man fled. 

I wrote the ballad in her defense when she was arrested and charged with first degree murder.

My husband was shocked. It was 1974 and the very thought that I would dare to write about rape–a forbidden subject—offended him.  That I could even consider defending the woman he found despicable.  The thought of me submitting the ballad to any publication appalled him.  He told me to burn it.

At the time, Women’s Rights and the Chicano Movement were gaining ground in the San Francisco Bay area.  When news of Garcia’s plight became known, feminists took up her cause, and Garcia herself became a speaker addressing women’s groups.

According to Wikipedia, I was not the only woman to take up the pen in Garcia’s defense.

As a cause celebre, her (Inez Garcia’s) case inspired numerous works of art and music, including the Beverly Grant folk song “Inez”, performed with the group The Human Condition; Marge Piercy’s poem “For Inez Garcia”;[5] and Jayne Cortez’s poem “Rape.”[6]

These women became noted for their work in Garcia’s defense and went on to become well published writers.

As for me, I didn’t burn my ballad, but I did essentially fold up my writing persona and immerse myself in motherhood and housekeeping.

That I gave up writing at that point in my life was not my husband’s fault.  It was entirely mine, for giving his opinion so much weight, and my own so little recognition.

Years later and in a more progressive relationship, I entered a university undergraduate program where I studied literature, including contemporary poetry. Writing that I found surprisingly reminiscent of my early work. 

And by degrees I learned to trust myself to write again, encouraged by professors who recognized my latent talent and helped me publish.

But the process is not the same. It’s a constant battle to put my writing first, to allow myself to sit down and open that channel. 

This is my continued fascination with Atomic Habits:  sooner or later the habit of sitting down to write will be ingrained, and I will once again, see myself as a writer.

If you are having self-doubts, if you feel that what you believe is worthwhile is being negated by everyone around you, don’t give up and please, don’t give in. 

Trust yourself, and find your place in this world.  It’s waiting for you.

Inez Garcia was retried and exonerated after serving two years in prison.

https://en.wikipedia.org/wiki/Inez_Garc%C3%ADa  Research data’

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Navigating Relationships: Insights from Autism and Philosophy

Growing up on the autism spectrum, I never understood power in personal relationships.  I naively assumed that as adults, people would just naturally treat each other with respect and acceptance. 

People would want what was best for themselves and for the other person.

And in the workplace that would translate to balancing out the needs of the client, with the efficiency and profitability of the firm, while developing processes which would enable workers to do the best possible job with efficiency, pride and productivity.  For a fair wage.

Once I found myself in the ‘real’ world, I had no idea how to navigate the stresses and anxieties of very different personalities malfunctioning together in the work place.

I once complained to my sister that in the personal relationship I was then immersed in, I was the only powerless person.  I was sobbing.  Her response was straightforward:  You have the power, Marg.  You just don’t use it.

The truth? I didn’t know how.

I’ve learned to hold my own since then.  And recently I’ve found two books that clearly speak to this issue. It’s a relief to find authors who clarify the critical aspects of successfully managing stressful interpersonal relationships. 

Because we all find ourselves in situations that require working with or being with other people. 

Situations like Life.

Ichiro Kishimi and Fumitake Koga, two Japanese authors, explore the emotional fallout that can result from coming into contact with ‘the real world’. In their book, The Courage to be Disliked they discuss the calming effects of accepting and embracing who you are.

This book does not even mention autism spectrum disorder. 

Instead, the authors talk about our response to people and situations, and how we can find contentment regardless of what others may think about who we are and what we choose to do.

The format Koga and Kishimi chose for the book is loosely based on Plato’s dialogues.  That is, it’s a plain-language conversation between a philosopher and a young man, revealing the philosophical or Adlerian keys to being true to yourself.

I enjoyed the back and forth discussion; the young man constantly challenging the concepts and ideas put forth by the philosopher.

The discussions  explore the acknowledgement that others are not always going to be aligned with your personality and goals.  In short, they examine how a person can best move forward regardless of the opinions and/or criticisms of others.

Kishimi and Koga discuss our concern about what others might think—and note that this is different from caring about others—and how that emotional involvement with what others think about us, can hinder progress toward being our best self.

It’s a clear philosophical foundation for living your life freed from the inhibiting power of what other people think.

Along the same lines, but much more in the vein of a self-help revelation is The Let Them Theory by Mel Robbins. 

Robbins covers topics from achieving your goals to making, maintaining and letting go of friendships.  Her premise is simple: Do people shun you?  Let them. Do others criticize you?  Let them.  Do they do things you would never do?  Let them.  Let go of critical judgements, critical of yourself and of others.

The letting go is only the first step.  Robbins is clear that two steps are needed for this theory to work in an emotionally healthy way. The second step is, after acknowledging the issue that makes you think, “Let them”, you will then go on to explore self-validation in a way that is satisfying to you.

Her delivery, far from being philosophical, is very personal and direct. 

As spectrum riders, we can mourn our social/political/employment situation, or lack thereof, to our heart’s content. But at some point, we have to pick up our tents and move into the real world.  And hopefully?  Make a difference, however small.

Yours truly,

Margaret Jean.

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This is How They Talk About Us…

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I thought it would be interesting to see what various individuals, professionals and non, have to say about us. Here is what I found:

Medical Institutions and Programs tend to view us from a broad neurological or developmental perspective. The word ‘disability’ is regrettably brought into play by the CDC.

National Institute of Mental Health:  Autism spectrum disorder is a neurological and developmental disorder that affects how people interact with others, communicate, learn, and behave.

Centres for Disease Control and Prevention (CDC): Autism Spectrum Disorder (ASD) is a developmental disability that can cause significant social, communication and behavioral challenges.

Other institutes and services see us as having a condition, needing support. But then doesn’t everyone need support? Friends, family, therapists even?

Cleveland Clinic: Autism is a condition that affects how your child socializes and behaves. Early signs include limited eye contact and body language and repetitive motions …

National Health Services, UK: Autism is different for everyone. Autism is a spectrum. This means everybody with autism is different. Some autistic people need little or no support. Others …

Reading from Wikipedia, I wonder if we are neurodevelopmentally disordered, or if perhaps it’s everybody else? “Persistent deficits” seems a rather unhelpful terminology.

Wikipedia:  Autism spectrum disorder (ASD), or simply autism, is a neurodevelopmental disorder “characterized by persistent deficits in social communication…”

And then we come to the researchers–finally, a ray of hope!

Bright Autism: “The future of autism research is not just about finding a cure, but about understanding and embracing the diversity of the human brain.”

Psychology Today, May 13, 2024 : Autistic people may be more likely to voice concerns when made aware of inefficient processes and dysfunctional practices in the workplace than non-autistic…https://www.psychologytoday.com/ca/blog/women-with-autism-spectrum-disorder/202404/are-autistic-people-more-likely-to-speak-up-at-work

This last quote looks interesting. Well worth following up in a future blog.

What have you heard about autism? And how does it affect you? Does what other people say affect you? I know a book that can help you with that: The Courage to be Disliked by Ichiro Kishimi and Fumitake Koga. But that’s another blog altogether.

And how do we prefer to be described? A UK study gave the following results:

Sage Journals: On the preferred language to describe individuals on the spectrum: The term ‘autistic’ was endorsed by a large percentage of autistic adults, family members/friends and parents but by considerably fewer professionals; ‘person with autism’ was endorsed by almost half of professionals but by fewer autistic adults and parents.https://journals.sagepub.com/doi/abs/10.1177/1362361315588200

And finally, two riders of the spectrum address the issue:

Jordan Hilkowitz Autistic Canadian CSI: “Autism is not a tragedy. Running out of bacon is a tragedy.”

Alexandra Forshaw: “Autism is not a disease. Don’t try to cure us. Try to understand us.”

Yours truly,

Margaret Jean

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Understanding Empathy in Autism: A Personal Reflection

How often have you read or been told that people on the spectrum have no empathy?  In my case, I can’t think of anything further from the truth!

When we were little, my older brother and I were mischievous.  Our grandfather had a beautiful vegetable and rose garden.  Manicured green lawns edged the rows of peas, cucumbers, green beans, tomatoes and root vegetables.  One day, when I was about four years old, and my brother seven, we found ourselves alone in the garden. 

My brother looked carefully around.  Then he looked at me.  Then we both looked at the fat pea pods hanging on the vines.  Before long, we had eaten quite a few, stripping the fat peas from the pods.  I picked a small cucumber when we left.  I planned to eat it later with salt from the kitchen.

With the empty pea pods hanging on the vines, it wasn’t long before the adults discovered what we’d been up to.

My brother got blamed.  He was older than me, and he was supposed to be a role model for me, not a leader in crime.  He got a whopping.

From behind the closed doors, I could hear Dad spanking my brother.  My father was a big man and my brother was a small boy.  My dad was not a gentle person, especially not when he was in a temper. 

In the next room, hearing my brother’s yelps of pain, I cried.  I cried not because I was scared, but because I was sorry for my brother.  I didn’t want my adored big brother to be hurt or humiliated and I was witnessing both.  I felt how cruel and unfair it was, for such a big man to be hurting such a little boy. I sobbed as if my heart would break for him. 

So I know for a fact that I have a solid cache of empathy in my Asperger’s heart.

Perhaps ‘flat aspect’ plays a part in how I am perceived.  I may feel very sympathetic, but my face is void of expression and emotion.   

Do you, as I do, find it embarrassing and irritating when people get annoyed with you for not responding to something they have said?  They want a reaction, and they want it now–in a time frame and a manner that they anticipate. What they term ‘normal’.

When someone tells me a story, or confides in me about an incident, I have learned to remain expressionless, while I am processing what they have said.

I may be very empathetic with the opinion or situation.  But I know all too well that my ‘take’ on the situation is probably not acceptable.

This reminds me of what Heather is quoted as saying in Chapter 14 of Spectrum Women, that she finds she experiences things differently from other people.  Yes, we do have a unique way of processing input.

While I’m thinking deeply about what  someone has just said, I’m processing the information internally. But the person I’m conversing with is looking for an immediate, recognizable verbal or visual response.

My momentary hesitation does not mean that I have no empathy or sympathy for the person or situation. Nevertheless, that is how my apparent lack of immediate response is taken. 

On the other hand, if I do bravely venture my unedited opinion, the other person is likely to express surprise, dismay or even disbelief.  So, I find it’s better to just say something neutral and polite.

And because I have been told so often that whatever opinion, emotion or response I might express is inappropriate, I will sometimes not only not speak my mind, but also mask my facial response.

This would almost certainly lead people to think I am uninterested in the conversation.   

Why do people think we lack empathy? For myself, I think flat aspect and internalizing my perceptions may well account for this result. Inside, I may be roiling with emotion. Outwardly, I seem detached. Am I the only one?

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The Rosie Series: A Great Read for Spectrum Riders & Their Significant Others.

Has AI deliberately misspelled titles and author name?
Has AI misspelled titles and author name to avoid copyright issues?

The Rosie Books: The Rosie Project: 2013, The Rosie Effect: 2014, The Rosie Result: 2019

Graeme Simsion does not claim his series of funny, sensitive books featuring his character, Don Tillman, is about someone with Asperger’s or anyone who finds themselves on the spectrum.  But it is.  My partner read it, and he said that Graeme Simsion writes like I think.  I state my case.

One of the reviewers is quoted as saying “Sometimes you just need a smart love story that will make anyone, man or woman, laugh out loud.”  Reading that you might think that Simsion is making fun of us non-neurotypicals.  But he is honestly not. 

I laughed a lot when I read this book, and I know some of that came from the situations the author put our protagonist (Don) in, and Don’s response to them, but another aspect that made me laugh out loud was the joy of recognition. 

It’s comforting to know that Simsion could take our predicament and in the bright light of day, show the world with humour and tenderness what it’s like to be us.

Throughout these books, I recognized aspects of my grandsons, my daughter and myself. We share some characteristics, but each have put our own personal stamp on the spectrum label, as has every other Aspie.

My partner, who is not on the spectrum, on reading the Rosie Effect, had great admiration for Don (the main character).  “Here is this guy with severe social deficits, doing everything he can to correct them,” he told me when he finished reading the book.  “The guy knows he’s limited and he works in every conceivable way to change that.”

If only to acquaint ourselves with that attitude, and to enjoy a humorous look at what it is to be ‘us’ in social situations, this book truly is a must read.

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Navigating the Autism Spectrum: Resources for Families and Individuals

An internet search reveals many resources, based on expertise and experience, for both spectrum dwellers and their families. I’ve found a number of researchers, doctors, psychiatrists who focus on autism, as well as parents and siblings of people with autism who have spoken or written about their experiences. And perhaps most of all, I appreciate the people who live their lives publicly riding the spectrum.

Where did my help come from?  Like many others, my help came from my family.  But not my parents. When I was growing up no information was available about children born on the high-functioning end of the spectrum. I was erratically school smart. And socially a constant and predictable embarrassment.

I talked too loud.  I talked too much.  I talked about weird things—like poetry or plays or Shakespeare. I failed Maths and Science but my essay on MacBeth (13 pages) was put in the reference section of the school library. 

My parents found me an embarrassingly unmanageable conundrum. It was my daughter who first understood the role autism played in our lives.

Fortunately, today there are many resources available to families and autists alike.

There are parents who write books sharing their insights, like Ellen Notbohm, author of Ten Things Every Child with Autism Wishes You Knew.

Researchers like Chloe Silverman, author of Understanding Autism, Parents, Doctors, and the History of a Disorder, trace the significant influence of parental advocacy in adjustments to treatment approaches.

And people on the spectrum like Temple Grandin who have boldly lived as they were born to live—unabashedly honest and talented, and faced the world with their truths.

We can read John Elder Robison’s advice in Be Different, or learn about his experiences with transcranial magnetic stimulation in Switched On.  

We can listen to Ted Talks by Temple Grandin about the positive aspects of the autistic brain, or hear Kate Kahle and Ethan Lisi relate that autism is a difference, not a disorder.

We can read shared stories by women about their relationships, parenting, and navigating the workplace in  Spectrum Women, or watch a variety of filmic portrayals of non-neurotypical life on TV.

These shared experiences open the possibility for self-acceptance and personal growth. It’s a feast. An intellectual and experiential banquet. And we are all invited.

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Embracing Neurodiversity on Valentine’s Day

On Valentine’s Day let’s ditch the negatives of being a Spectrum personality. Let’s remind ourselves that more and more, people are realizing the positive aspects of neurodiversity. This can generate a more understanding response when we experience anxiety in social situations. I see a positive shift in public perspective regarding those of us who process information differently.

For instance, more and more TV shows and movies are featuring characters with neurologically diverse traits. Some individuals on the spectrum are being hailed as best selling authors and speakers. This signals an interest in and acceptance of neurological diversity which has not been seen before.

Sometimes scenes on the big screen can help us see ourselves more clearly. Take the intro of Monk for instance. When the detective goes back to straighten the umbrellas hanging on the wall, my partner always says, “That’s me!”

When Monk is facing an uncomfortable social situation, my heart beats faster and my palms sweat. Oddly enough, I don’t feel nearly as anxious when he’s cornered by a bad guy!

That series, Monk, was first aired in 2002 and ran for 8 seasons. For three years, the show held the record for the largest viewing audience after it aired the final episode. This illustrates the incredible popularity of the show.

There are a few TV series now featuring the concept of someone on the spectrum. After Monk came The Big Bang Theory in September of 2007. This series is about two geeky physicists who share an apartment. It’s not only Aspies who enjoy and appreciate the Big Bang. Over twelve seasons, the series consistently ranked in the top ten in their category, placing first in their eleventh season. Over the years, the series won awards for comedy, writing, and acting.

Since then a few series have sprung up, including the Korean Legal series Extraordinary Attorney Woo. It’s well worth turning on the closed captioning for this one. The main character displays autistic characteristics and verbally expresses her needs and idiosyncrasies.

When I’m watching this show, I often find myself thinking, “Yes! That’s exactly how I feel!”

If you’ve never heard of Extraordinary Attorney Woo, you can watch the trailer here: https://www.imdb.com/video/vi3256992281/?playlistId=tt20869502&ref_=vp_rv_ap_0

Here’s another resource. The Autism Research Institute website will direct you to their list of the top 36 movies and TV shows featuring autism.

Want more variety? Me, too. I’m sure there are other shows and books that I’m not aware of. I’d like to hear about your favorite TV show, book or movie that involves autism.

It’s Valentine’s Day: a day to celebrate our unique qualities. A day to enjoy the current, more positive media representations of neurodiversity. A day to give ourselves the gift of loving acceptance.

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A Work In Progress

Making the Body/Mind Connection Part 3

I am trying hard to follow my own advice and be more mindful, but too often, I find that I am not. 

I find myself preoccupied with work problems and issues.  It’s high season for my seasonal work, and the demands on me are almost unbearably heavy right now.

I do not wish for my days to be entirely consumed with work. There is so much more that I want to do!

I live on the usually rainy west coast of BC, but when it is unseasonably sunny out, I need to bask in that sun for at least half an hour, just to remind myself that there’s a rewarding and joyful life available and waiting for me.

I like to both read and least listen to books, but I am reduced to only listening to audio books in the car on my way to the gym.

 Lately, I find I am not even making time to phone and chat with my friends or keep in touch with my distant cousins and relatives, some of whom count on me for support and encouragement.

I am incredibly fortunate in that I have a caring partner who plans and prepares our meals, and takes care of the light housekeeping and gardening. 

So really, my complaint, when I stop to think about it, is not about my situation, it’s about how I am dealing with it, which is a result of what’s going on in my head.

This reminds me of an article I once read, by an esteemed author named Ekhart Tolle.  He said something that really caught my interest.

He said our minds are busy clogging up our thoughts with the past and the future. This keeps us from noticing and fully living the possibilities and the pleasure of the moment we are in. 

Tolle believes that even when we feel that being in the present moment is painful, unpleasant or even unacceptable, that feeling is a judgement we are making about that moment. And just thinking in those terms, Tolle warns us, works against our best interests. 

These assessments of our situation are pronounced as unalterable facts by our mind, and Tolle posits that it is this judgement which causes us pain and unhappiness.

Tolle’s wise advice?   “Whatever the present moment brings, accept it as if you had chosen it.”  He cautions us to always work with the present and never against it. 

“Make the present moment your friend and not your enemy, and you will transform your life.”

This advice sounds powerful. Also very difficult to initiate and sustain.

Reflecting on this article, which I’ve found in my files, I realize that accepting the reality of the present moment requires practice. 

To do so without adding mental predictions of where it is taking me, or how it has affected me, or labelling it a positive or negative moment, to simply accept the moment whatever it may bring, could be the next step in my journey to mindfulness.

I must learn to live in the present moment.  To recognize what I am doing.  To be fully cognizant of my immediate situation, my environment and my body, as I am moving into the next moment.  And that the next moment is always an unknown.

I am working on it.

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United We Stand, Divided We….

Exploring the Mind/Body Connection Part 2

I am grateful to my body for all the years it has amazingly, carried me through this life. In elementary school, it helped me win races and high jump and in high school, allowed me to participate in team sports like baseball and basketball. I could act in film and on stage. I could walk for miles and often had to.  This body bore me three fine children.  And in the confines of this body, I cared for a husband with a critical heart condition. 

But ultimately, I never thought much about the physical embodiment that accompanied ‘me’ wherever I went. I stumbled, tripped, rushed, and blundered.

Alternately, I would sit for hours in an unhealthy position, lost in a book or a problem or a project.  My body was just there with me, taken for granted, unnoticed, like an unloved child in the room.

The most positive remark I can make about my attitude toward my body is that I have always been aware that mobility is crucial to a vibrant and happy life. So, this project of honouring my physical self should be a simple matter, right?

The trouble is my mind seems to be jealous.

Just when I think I’m doing well with regular breaks from the computer for movement and stretching, or going to the gym, my mind steps in and takes over, completely absorbing me for hours beyond the time I have allotted it, and once again robbing my body of its due.

Why do I live so much in my head?  Why are my thoughts a constant flow of unremitting playback and commentary? 

Why can I not enjoy a mental silence now and then?  A cessation of mental chatter, a period of serenity which would allow me to breathe more deeply, to drink in the moment, the bright purple and yellow of the primulas outside my window, the hummingbirds hovering at the feeder, the snow on the roofs across the way.

Suddenly, it becomes clear: to give my body its due, I must be able to exert some control over my mind.

My friend, Richard, an expert in mindfulness tells me it will take a conscious effort to co-ordinate my body and mind. It’s a matter of giving my physicality the mindful recognition it deserves. And treating it respectfully. 

Richard says I must learn to be still: to extricate myself from this mental rat race in which I seem perpetually absorbed.

I must deliberately engage both body and mind, he tells me, not only when motion is involved but also when it’s time to be still!

He says there is a way to harmoniously reunite my mind with my body. That I must recognize that there are no grounds for perceiving these aspects of myself as a duality. But this body/mind division seems so real to me. If he’s right, I’m not dealing with two separate entities, body and mind are intimately connected. It seems they just don’t recognize each other now.

I must introduce my body and my mind to each other.

I’m going to ask Richard to tell me more about this. What does recognizing the oneness of my body and mind look like in everyday life?  How do I practice this kind of unity? Does anyone else feel this disconnect–this separation of these two aspects of self? How do we reconnect, assuming the connection existed in the first place?

Come join me in my exploration of the mind/body connection!

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Making the Body-Mind Connection

All my life I’ve dragged my body around behind my mind. 

I’d be sitting at the computer and suddenly think of a resource I needed from another room, or something cooking on the stove that needed tending.  And I don’t quite know how to explain this, but my mind would just start going over there.

And my body would be like “Wait for me!” as I blundered out of my chair, nearly knocking it over, possibly tripping on something, my head and shoulders bent forward, my mind literally pulling me to whatever destination I had in mind. 

I did not ever first think about what I wanted, giving my body time to collect itself and rise with dignity and move gracefully to that place.

I was a human version of a train wreck.

When I sat, hunched over my desk, leaning into my computer, my book, or my sewing.  my posture suffered. My breathing and bodily functions were affected by the scrunching up of lungs and organs.

When I ate, I inhaled my food as if I had an agenda and I was already late. 

I did not have the grace to eat slowly, to make conversation with my husband, to comment on the tastes, smells and textures of the food, the care taken with the table setting, or any other aspect of the time and effort that went into the preparation and presentation of the meal. 

As if devoid of all sensory perception and completely lacking in graceful manners, I ate, immediately got up from the table, cleared the dishes and washed and dried them.

My husband, who not only cooks fabulous meals, but believes in candlelight, tablecloths and flowers as normal dinner table settings, was left sitting alone in his chair,

As a young girl it had been drilled into me that a clean kitchen was the hallmark of a good wife and mother, and since I had so much to do, the sooner it was cleaned up, the better. Right?

Lately, I have made a substantial effort to change.  I have decided, late as it is in my life, to acknowledge my body as a vital, omnipresent part of me, and to give it due time and attention.  But how?  After a lifetime of neglect, it’s going to take a big rethink.    

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