Tag Archives: Ellen Notbohm

Navigating the Autism Spectrum: Resources for Families and Individuals

An internet search reveals many resources, based on expertise and experience, for both spectrum dwellers and their families. I’ve found a number of researchers, doctors, psychiatrists who focus on autism, as well as parents and siblings of people with autism who have spoken or written about their experiences. And perhaps most of all, I appreciate the people who live their lives publicly riding the spectrum.

Where did my help come from?  Like many others, my help came from my family.  But not my parents. When I was growing up no information was available about children born on the high-functioning end of the spectrum. I was erratically school smart. And socially a constant and predictable embarrassment.

I talked too loud.  I talked too much.  I talked about weird things—like poetry or plays or Shakespeare. I failed Maths and Science but my essay on MacBeth (13 pages) was put in the reference section of the school library. 

My parents found me an embarrassingly unmanageable conundrum. It was my daughter who first understood the role autism played in our lives.

Fortunately, today there are many resources available to families and autists alike.

There are parents who write books sharing their insights, like Ellen Notbohm, author of Ten Things Every Child with Autism Wishes You Knew.

Researchers like Chloe Silverman, author of Understanding Autism, Parents, Doctors, and the History of a Disorder, trace the significant influence of parental advocacy in adjustments to treatment approaches.

And people on the spectrum like Temple Grandin who have boldly lived as they were born to live—unabashedly honest and talented, and faced the world with their truths.

We can read John Elder Robison’s advice in Be Different, or learn about his experiences with transcranial magnetic stimulation in Switched On.  

We can listen to Ted Talks by Temple Grandin about the positive aspects of the autistic brain, or hear Kate Kahle and Ethan Lisi relate that autism is a difference, not a disorder.

We can read shared stories by women about their relationships, parenting, and navigating the workplace in  Spectrum Women, or watch a variety of filmic portrayals of non-neurotypical life on TV.

These shared experiences open the possibility for self-acceptance and personal growth. It’s a feast. An intellectual and experiential banquet. And we are all invited.

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Help For Aspies–Can Be Found Where?

https://www.youtube.com/watch?v=AbeyIG7Fz8s://

Growing up in the 1960’s when nobody knew about Asperger’s syndrome, when it hadn’t even been officially accepted or even described by the AMA, was confusing and frustrating.

In my book, Unforgiving, Memoir of an Asperger Teen, I talk about that frustration.

 And if it was bad for me, I hesitate to think how tough it was for my parents to have an Asperger’s Syndrome child in an era when manners and social conformity meant everything.

Thank goodness now there are several organizations whose sole purpose is to guide parents and adult Aspies through the maze of diagnosis, treatment and general support.

Positive affirmation is the guiding principle.

I am impressed to read in the Autism Speaks website (www.autismspeaks.org) that many adult-diagnosed Aspies “make great strides by coupling their new awareness with counseling”.

The Autism Speaks website is a great resource, with it’s many articles and references.  Especially popular is their Asperger Syndrome Tool Kit.

Included in that tool kit is Ellen Notbohm’s Ten Things Every Child With Autism Wishes You Knew.  I wish my parents could have read it.  Maybe your child feels that way, too.

And if you’re an adult with Asperger’s?  Read it anyway.  It can help you let your friends know how to help you.

Yours truly,

Margaret Jean.

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