Tag Archives: asperger traits

About Autism Syndrome Disorder: Did You Know….

Bev & I blogMy adult daughter, who is diagnosed with Asperger’s, came home one day and told me how surprised she was to find that most people when they enter a room?  Look at the people.

“I always look at the layout of the room,” she explained, “how the seats are laid out, where the doors are, where the teacher is working from, what equipment is in the room, where the windows are.  I never thought to look at the people.”

This is an example of what Dr. Jim Tanaka of UVic says about difference in perception between those with and those without ASD.  It also illustrates Simon Baron-Cohen’s point that kids on the spectrum find systems more fascinating than people.

Other problems of perception happen because of focus.  At SFU, I was an English Lit major.  It took me ten years to get my degree as a mature student.  I can’t believe in all that time, I never realized that SFU has an Autism and Developmental Disorders Lab.  I was totally focused on English classes, which were in different wings than the sciences.

I now know that lab is headed by Dr. Grace Iarocci, and its current focus is the way in which visual perception is affected both negatively and positively by processes of attention.

This year, they’re co-hosting three community events about ASD kids, their families and the quality of life.  The idea is to open a discussion about quality of life issues for ASD  individuals, care givers, professionals and families.  It’s free, open to the public.  Watch their website for scheduling:  http://autismlab.psyc.sfu.ca/events

Dr. Iarocci apparently has influence with the government and bodies determining ASD funding, so please do attend and voice your opinion loud and clear.

Yours truly,

Margaret Jean.

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Asperger’s Syndrome: Origins.

Margaret Jean, Irene Good and Beverly at the Ladner Rotary Luncheon.

Margaret Jean, Irene Good and Beverly at the Ladner Rotary Luncheon.

Recently, I was asked to give a talk to the Ladner Rotary Club on Asperger’s.   The date they had in mind was only four days away.  Probably their scheduled speaker bailed, but I’m just happy to have a chance to increase awareness.  It’s all good, right?   Four days?  I could do this.

I phoned my daughter, Bev right away.

“A room full of business people?”  Bev asked.  “Great.  We’ll talk about Asperger’s in the workplace.”  See why I called her?  Bev always knows what to do.

“Okay, I’ll talk about the origins of Asperger’s just to be sure they know what it is, and you do the workplace part,”  I said.  She agreed.

Here’s a bit of my part of the speech.

Thanks for inviting us to speak today.  Free lunch is always good.  But imagine if someone, say a co-worker, asks a person to lunch, and right away that person becomes anxious?  Clearly apprehensive.  Wouldn’t that be amazing?  But for some people with Asperger’s, it wouldn’t be unusual.

So what is Asperger’s, anyway?  And why is it called that?

Asperger’s came to be known as such this way:  In 1944, in Austria, a paediatrician detected some odd behaviour in four of his young patients.  They did not socialize well with the other children.  Their non-verbal communication skills were virtually non-existent.  When they talked?  Their language was stilted or formal.  And they seemed to each have a favorite topic which was of intense interest to them, and therefore dominant in their conversations.  And finally, they seemed to have little or no empathy with the other children.

These findings were published, but only in Germany.  The doctor’s name was Dr. Hans Asperger.

It wasn’t until 1981 when a British physician and psychiatrist, a Dr. Lorna Wing, published several case studies of her own, that Asperger’s was introduced to the world.  Dr. Wing’s case studies exhibited similar symptoms as the children the Austrian doctor had observed, and she referred to them as having “Asperger’s Syndrome”.

Her studies were widely read and published, and her 1996 study is considered by some to be the definitive work on Asperger’s.

In 1992 the World Health Organization added Asperger’s to its list of diseases and disorders.  In 1994, The American Psychiatric Association added it to their manual of Mental Disorders.

But today, researchers such as Simon Baron-Cohen of Cambridge University and Dr. Jim Tanaka of UVic emphasize that Asperger’s is not so much a disorder, disability or disease; It is more a difference in how the brain processes information.

Stay tuned next week for Bev’s part of the talk!

Yours truly,

Margaret Jean.

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Asperger’s Syndrome: What is it, exactly?

What is Asperger’s syndrome?

This article is taken from webmd.com

Asperger’s syndrome is a developmental disorder that makes it very hard to interact with other people. Your child may find it hard to make friends because he or she is socially awkward.

People with Asperger’s syndrome have some traits of autism. For example, they may have poor social skills, prefer routine, and not like change. But unlike those who have autism, children with Asperger’s syndrome usually start to talk before 2 years of age, when speech normally starts to develop.

Asperger?s syndrome is a lifelong condition, but symptoms tend to improve over time. Adults with this condition can learn to understand their own strengths and weaknesses. And they can improve their social skills.

Both Asperger’s syndrome and autism belong to the group of disorders called pervasive developmental disorders (pdd).

What causes Asperger’s syndrome?

The exact cause of Asperger’s syndrome is not known. And there is no known way to prevent it. It tends to run in families. So researchers are doing studies to look for a genetic cause.

What are the symptoms?

Asperger’s syndrome is usually noticed at age 3 or later. Symptoms vary, so no two children are the same. Children with Asperger?s:

  • Have a very hard time relating to others. It doesn’t mean that they avoid social contact. But they lack instincts and skills to help them express their thoughts and feelings and notice others’ feelings.
  • Like fixed routines. Change is hard for them.
  • May not recognize verbal and nonverbal cues or understand social norms. For example, they may stare at others, not make eye contact, or not know what personal space means.
  • May have speech that?s flat and hard to understand because it lacks tone, pitch, and accent. Or they may have a formal style of speaking that?s advanced for their age.
  • May lack coordination; have unusual facial expressions, body postures, and gestures; or be somewhat clumsy.
  • May have poor handwriting or have trouble with other motor skills, such as riding a bike.
  • May have only one or a few interests, or they may focus intensely on a few things. For instance, they may show an unusual interest in snakes or star names or may draw very detailed pictures.
  • May be bothered by loud noises, lights, or strong tastes or textures.

How is Asperger?s syndrome diagnosed?

If you are concerned about your child?s behavior or communication style, talk to your child?s doctor. He or she will ask you about your child?s development and ask if other people have noticed your child?s social problems.

The doctor may refer you to a specialist to confirm or rule out Asperger?s syndrome. The specialist may test your child?s learning style, speech and language, IQ, social and motor skills, and more.

http://www.webmd.com/brain/autism/tc/aspergers-syndrome-topic-overview

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Autism Spectrum Disorder: A Reading List For Parents and Adults Who Live On the Spectrum.

Like Sheldon, I like research.  Thus, books and therapies have been the topic of my latest blogs.  I have not tried any of the therapies myself but feel they are a resource worth looking into.

As for books, here is my personal rating of three recent reads.

1. Quirky Kids by Perri Klass MD and Eileen Costello MD.

Published in November 2003, this is the earliest of the books covered here, so some information may be outdated.  It is divided into three sections as follows:

1.  Noticing and dealing with difference in your child.  2.  Adjusting the home and school environment.  3. Science of Autism, including meds and other drugs.

What sets this book apart for me, is the inclusion of parental anecdotes which illustrate concerns, anxieties and solutions .

My take?  It’s a comforting book for parents of ASD children.

2.  Understanding Autism for Dummies by Stephen Shore and Linda Rastelli.

Truly a professorial approach, this book could be called “Everything you wanted to know about autism but didn’t know who to ask”.  

Because the author himself is a person with autism spectrum disorder, he writes about the syndrome in a very positive way.  Quite refreshing.  

Information wise?  Autism for Dummies is a 10/10.

3.  FAST MINDS: How to Thrive if you have ADHD or think you might.  By Dr Craig Surman and Tim Bilkey.  February 2013 first edition.

Latest in this list of books, I found this a most practical guide.  Take the logic behind my weird schedule for instance.  The authors explain how my habits more than my brain, keep me up late at night until the wee hours of the morning.

Thus I’m often exhausted which can lead to poor motivation to do anything.  Doing nothing when I have lots to do makes me feel out of control.  That can be depressing.

But the doctors also explain how forming new habits can change this pattern, and what new habits need to be developed.  (they also explain the brain science behind developing new habits).

So I figured out I like to write between midnight and 5 a.m. because there are far fewer distractions at that time.

However, this is only productive if I am getting enough sleep at other times of the day.

And thanks to FAST MINDS, I now know to slot sleep with other scheduled tasks.  In other words, I can be organized about being weird!  How great is that?

I really like this book.  It has opened a lot of mental windows for me, helping me to see where a lot of my issues stem from organically.

Therefore?  In terms of being helpful?   I’d give this book a 13 out of 10.

Yours so very truly,

Margaret Jean.

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Asperger’s at the Surrey International Writers’ Conference (SIWC)

This weekend the SIWC takes over the Sheraton Guildford, with hundreds of writers, including Asperger me, swarming the premises.  A volunteer at the Federation of BC Writers’ table, I took the opportunity to promote my book, Unforgiving, the Memoir of an Asperger Teen.  

People were frank in expressing their curiosity about Asperger’s and I was delighted to be able to clarify about and advocate for Asperger’s and Autism.

Many people have heard about Asperger’s but aren’t sure what the term implies.  Not only did people want to know what behavioural anomalies were associated with Asperger’s, but also what that might look like in a person’s life.

I explained that Asperger’s kids generally are very honest, almost unable to lie.  Deceit and manipulation are usually beyond them.  They also go largely by spoken word, and are unable to pick up on tonal variations (sarcasm, innuendo) and facial expression.

This makes these children extremely vulnerable to bullying.

At the very least, Asperger’s kids are often socially challenged, not learning how to respond to others by observing others in a social setting.  They mostly need to be taught, step by step, with the how and why of each type of social encounter.  Even then, the child may get it wrong, either because of mistaking the type of social interaction he is responding to, or because of feeling “safe” in the situation having passed the first few minutes in acceptance, and then getting it wrong beyond that point.

In my book, Unforgiving,  I show some of the blunders I made, some of the vulnerability that comes from being unable to communicate in an appropriate way both with adults and peers.  Having Asperger’s can make one a target for bullying, for pedophiles, for all sorts of difficult situations.

Keeping the lines of communication open, and understanding the syndrome is crucial to keeping your Asperger’s child safe.

I was glad for the chance to talk to people at the SIWC about Asperger’s.  Hopefully, it will make a difference, however small, in someone’s life.

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Asperger Traits? Really?

I love this video about Asperger’s traits: http://www.youtube.com/watch?v=d7lQa3q_OAk&feature=related .  It seems to me to be thoughtfully put together.  But I am tired of hearing that Aspie’s have no empathy, and imaginary worlds are beyond us. 

In my book, Unforgiving, Memoir of An Asperger Teen, soon to be out on Amazon, I talk about the part imagination played in helping me through my childhood.

And why, if imagination is not our strong suit, are so many inventors, film makers, and landmark thinkers such as Isaac Newton, included (often posthumously) in the syndrome?  These are obviously people with foresight and the ability to envision possibilities that are beyond others’ comprehension.  

Difficulty with writing imaginatively?  Thinking?  I highly doubt it.  It is precisely the ability to see beyond their current limitations that made these people famous!

So what? you may say.  These people were not diagnosed, they are just presumed by some people to have Aspergers’ or Autistic tendencies.  

Well then let me give you the example of my grandson, who was diagnosed at an early age as being in the autism spectrum, and who, before he had graduated highschool, had written an entire book length story based in a science fiction fantasy world that he created.

As for empathy–It isn’t that we don’t experience empathy–it’s that our voices, faces and body language don’t show it.  We have what is called “flat affect”.  This makes us seem to have no response to events.  We also have little or no tonal expression (unless we’re in panic mode and often, even then!). 

Thus, it’s very difficult for people to grasp when we’re feeling anything.  Sometimes we might be totally panicking inside, or absolutely happy about a suggestion someone has made, but we don’t express this well.

I remember watching a woman exclaim expressively and happily about a suggestion her husband had made.  Asperger me, I thought her very melodramatic.   Seriously, I thought that sort of facial and tonal response belonged only on the stage!  

Undoubtedly some people who do not feel empathy and/or have trouble with imaginative thinking are in the Autism Spectrum.  Just as others who lack empathy and imagination, are not in the spectrum. 

Yours truly,

Margaret Jean.

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