Author Archives: Margaret Jean

Connecting Fathers To Their Autism Spectrum Child Through Understanding Sports Play.

Many parents feel disconnected from their Asperger’s/Autism spectrum child.  What do Dad’s often see as the ultimate shared male pasttime?  Why, sports of course.

And that’s where Sluis Academy founder and teacher Bill Sluis enters the scene.  Sluis has developed and refined a proven method of teaching socialization through physical activity.  A method that should help fathers bond with their sons and daughters as they teach them both social and physical skills related to games and team sports.

Sluis has had success using everything from a simple ball toss, to teaching autistic and special needs children baseball, golf and even shotput.

This high school teacher’s approach has been refined over a period of 35 years, and he has seen some amazing results.  My daughter and I attended a presentation by Sluis tonight. As you may know, both my daughter and I, and her son have Asperger’s, and my daughter is also an Special Education Assistant in a high school.  We were astounded at his knowledge of the issues.

In every case, Sluis understood the anxiety associated with sports.  “Developing the skill level wasn’t sufficient,” he explained tonight.  “Initiating into the game was another problem.  Getting into the game and maintaining that.”

Speaking as an Aspie, it is wonderful to hear someone speak not only to the need to develop a child’s physical skills but also to assist him in negotiating the social anxiety associated with trying to integrate oneself into a team sport.

Initiating into the game is a process few Phys Ed teachers even consider putting on their curriculum.  And yet, for children on the Autism spectrum, figuring out how to get invited into the game, and stay welcome throughout, is a huge source of anxiety.  

Even if we have the physical skill set, how do we get what Bill Sluis calls “initiated” into the game, and how do we get people to want us to stay?  We may have a great physical skills level but we need to show that in interaction with others.  And that requires another skill set–also completely foreign to us.

This is where the Sluis method is perfect.  It addresses both these anxiety sets, something few other methods do.

You will hear more about Bill Sluis and the Sluis Academy in future blogs.

The Sluis Academy is new, and it’s website is still under construction.  But you can go to http://www.sluisacademy.com/ and see what help will soon be available.

Bill Sluis is available for presentations to teachers, parents and other groups who may be interested in his work.

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Steps To Socializing Your Aspie Teen.

As you can see from my last post, the issue of socializing is huge for Aspies.  This is especially true in the late pre-teen and early teen years.

Arranging a social event with a friend isn’t always the answer if the child with Asperger’s has trouble communicating in a meaningful way.  Just getting them together with  a “neurotypical” teen in a social setting isn’t going to help.  In fact, it can be disastrous.

Anna Matchneva from Burnaby BC works one on one with Asperger’s children, and this is what she suggested in a talk to parents last year.

First, limit the time for interaction to ‘safe’ time, that is time when the conversation will most likely be of mutual interest.

How do you do that?

Anna finds getting your teen Aspie to invite a friend for pizza and a movie is ideal.

First on the agenda is going to the movie.  When they are driving to the movie, they can talk about what movie they want to see and all the things they have heard about the movie.

Other topics may come up, but the drive to the theatre should not be too long, and the parent driving them can always intervene a little if necessary.

Next, at the movie, the parent drops them off.  The talk will be about arrangements to be picked up, how to buy the tickets and what snacks they want.  This is very safe also.

Once in the theater, everything should be good.  Although in my experience?  The Aspie child may have to be warned to be quiet and not comment during the movie, but save all their comments for afterward.

The time from the end of the movie to pick up should be minimal, to ensure that the conversational requirements don’t tax the Aspie child.

Then to the pizza parlour.  Again, conversation will center around the children’s preferences, and the movie action and how the children rate the movie.

After pizza, time for the guest to be dropped off at his/her home.

This kind of managed social time gives Aspie’s a sense of confidence which should ease both the child’s and the parent’s anxieties over social situations.

Let me know how it works if you try it, please!

Yours truly,

Margaret Jean.

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Speak To Me, Aspie. Or Not. Conversational Skills For Asperger Me.

One telling symptom of Asperger’s that most professionals agree on is the conversational habit of interrupting and overtalking.

For most  Asperger’s types, especially early on, ages three and up, the opportunity for social exchange is really limited.  But our brains are going all the time.

This results in a ton of thoughts and ideas bottled up inside of us.  Ideas we firmly believe are worth sharing!

We feel starved for verbal connection.  And the moment someone opens up that opportunity for us to be verbal , facts and observations totally unrelated to the topic of conversation can spew violently out, one thought immediately overtaking the last.

This feels rude and frightening to the person who has unwittingly engaged us.  When they try to bring us back around to the topic, we tend to talk over them or interrupt.

The other person’s comfort level is now in alarm state.  They feel an urgent need to escape our presence.

I have learned that self control is a major factor in making and keeping friends.

To have a real conversation, one in which others will gladly participate, I find these simple rules can be helpful:

1. Give others time to speak.

2. Concentrate on listening to them.  Be truly engaged with what they are saying and feeling.

3. Verbally respond in a positive way to what they have said.

4. Do not simply wait impatiently until they stop talking so you can start.

Learning to listen is a powerful aspect of conversing.  Really hearing and understanding what the other person is saying and responding appropriately  is the bridge that connects us to the rest of the human race; to our parents, our siblings, the people we want to have for friends, and our whole community.

And guess what?  Aspies aren’t the only ones who need to learn the art of conversation!

Yours truly,

Margaret Jean

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What Is Asperger’s Anyway?

This weekend so many people asked me, What is Asperger’s?  How can I tell if my son has it?

My book, “Unforgiving, Memoir of an Asperger Teen” took a 1st place Journey award, and prompted a lot of questions about the syndrome.

People with Asperger’s find it difficult to read body language, voice intonation, and facial expression. This creates difficulty communicating and interacting with other people.

Asperger’s doesn’t always affect individuals to the same degree, or in exactly the same manner, which is why it is said to be on the “autism spectrum”.  That is, it is a highly functional and variable condition that alters how we relate to others, understand our community, and express ourselves.

Sometimes we feel hopelessly lost in a conversation.  We cannot always determine what is sincere and what is merely light-hearted social bantering.  Sometimes this is so isolating that we withdraw.  We do not understand what is being said or in what context and therefore we pretend to be disinterested.

This makes us very bad at small talk, which is society’s established method of feeling each other out before going into deeper conversations.  Small talk is a protective device that helps people locate each other in their social setting and their community, whether it’s school or work or something recreational.

People with Asperger’s tend to want to talk at a deeper level.  They have trouble understanding this is not appropriate much of the time.

We may not be able to tell when to join or start a conversation, or when the conversation is over.  We may talk over the other person and generally interrupt at lot.  A great website to look at for assistance is the UK’s National Autistic Society website at: http://www.autism.org.uk/about-autism/autism-and-asperger-syndrome-an-introduction/what-is-asperger-syndrome.aspx.

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Free The Children: Kielburger’s Clarity and Commitment Builds A Powerful Organization.

After reading Free The Children by Craig Kielburger, I realized how clear the then 12 year old Kielburger’s vision was, and how maintaining that clarity made helping people really very simple.

  • Kielburger’s goal?  To continue the work of a freed child-labourer who had been assassinated.
  • His mandate?  For children to work together to right injustices perpetrated against impoverished children without adults being in charge or interfering.

In pursuit of that vision, he enlisted the help of his schoolmates.  They encouraged each other in the assumption that this was possible.

  • Education:  Kielburger and his team educated themselves, learning all they could about the topic.

And when confronted by people who saw the situation from a more sophisticated perspective they admitted only a temporary defeat.  They researched & studied until they were able to return and respond appropriately.  This later served Kielburger well in dealing with governmental agencies and other administrative bodies.

  • Action:  He travelled the world so that he could report the situation accurately from his own knowledge.  In his travels he interviewed many of the child labourers, often surprised by their perspectives.
  • Respect:  He showed respect, even for his opponents, for the impoverished children, government officials and charitable organization administrators.  Thus he won the respect of all.

Free the Children is responsible for building more than 650 schools providing daily education 55,000 children.

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Need Help In BC? ACT: A Resource for Aspies, Parents & Friends.

Where do parents turn when they realize their child needs a diagnosis?  How do they know who offers this type of service?

What programs and supports does the BC school system offer children on the Autism spectrum?  How are these programs accessed?

How do you make sure your child is getting all the support the government says he/she is entitled to?

Is there a registry of autism service providers?  Is there an information database listing online resources?

In British Columbia, Canada, the answer to all of the above can be found in ACT: the Autism Community Training website at http://www.actcommunity.net/.

I only discovered the website this week, but find that it a huge resource for people struggling to find resources for children in the Autism spectrum.

News, blogs, videos and educational material relating to the autism spectrum are all included. While the website is geared to assisting parents with children in the spectrum, there are informative segments relating to adults as well.

A wide range of service providers are listed; really, the list is staggering in its comprehension.

If you live in BC and you are looking for an autism related resource, I strongly suggest you try this website.  Let me know what you think of the resources listed there, and if the phone and email responses live up to your expectations.

I look forward to hearing from you!

Yours truly,

Margaret Jean.

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The How-To Behind Friendship (Not Just For Aspies!)

Making friends and keeping friends: Research confirms these are two areas that seem to seriously challenge children with Asperger’s.

 So says Anna Matchneva, a lecturer and one-on-one counsellor who works closely with children on the autism spectrum and their parents.

Rejected:  This is a category of children Anna often sees.  She is not referring to parental neglect, but to the playground or social setting.

The rejected child is one who tries to join a group but is denied access.

Mostly we will never know why some people choose not to be friends with us.  But totally there are things we can do differently.

For instance, we might approach a group and start talking about whatever is on our mind when really?  We need to listen.  Try to pick up on what the others are saying.  Take a little time to formulate a brief remark in line with their conversation.  Don’t try to work in your current interest.  Stick to their conversation.

But hey, that’s easy to learn, right?  Just take a little time before speaking.  Listen.  Try to understand what they’re talking about.  Not just what they’re saying, but what they mean.

 We Aspies get a little starved for attention sometimes and that can make us talk too much, too loud, too soon.  But it’s easy enough to get over those habits.

I know myself, I have to be careful not to dive hell bent for leather into a topic, completely overwhelming and boring the people who were kind enough to invite me into the group.

And anyway, not every group wants another member.  They may be having a private conversation.  They may believe they have nothing in common with you, and therefore, not see any point in trying to make friends.  Maybe they are happy just as they are.  Then you need to find someone else to talk with.

Remember, your focus can be a very good thing, even if others don’t want to share in it.  It’s similar to the single-mindedness that made Taylor Swift a star and Bill Gates a computer mogul.

Try to listen first.  Take a minute or two to find out what the group and the conversation is about.  And when you do speak, smile, keep a neutral tone, and above all, be brief!

And please note–Aspies aren’t the only people in the world who have trouble making and keeping friends.  Lots of people do!

Yours truly,

Margaret Jean

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Aspie Teens–The Future Can Be Bright.

As the New Year approaches, I want to tell others out there, especially those teens with Aspergers, that life does get better.

I want you to know that although we aren’t born with the ability to learn about initiating and maintaining social relationships by observing others, it is something we can and usually do learn as we mature.

I want you to know that people do fall in love with us and stay in love, and that there are nurturing relationships ahead.

If you are an Aspie teenager, all of this may seem impossible right now, but I promise you, these things do lie ahead.  Even for you.

I know.  I am living proof.

Love you all, and pray that you have a meaningful and sociable New Year.

Yours truly,

Margaret Jean.

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Bullying at School: Any Connection to Connecticut Tragedy?

We grieve for the innocents slain in Sandy Hook.

Make no mistake about it.  Those children were NOT responsible for what happened to them.  Neither were the adults.  Adam Lanza was solely responsible.

But more and more we hear about school bullying, and as the grandparent of children with Asperger’s, I often hear first hand about bullying in schools.

My grandson was beat up at the ripe old age of six, with other children chanting, “kick him in the head! Kick him in the head!”

When he fought back, school officials forced him to apologize to the group of boys who attacked him.

This is not only the case for kids in the Autism spectrum.   A young man with Tourette’s syndrome, told me “high school was hell.”

Another grandmother told me about her grandson, Carter** now eight, who has battled cancer since the age of two.  Because he is bald most of the time, sometimes bloated from meds and treatments, he is often ostracized by his school mates.

Tiny in comparison to his tormentors, taunted and attacked, Carter fought back.  School officials insisted he apologize to the bullies.

My grandson was fortunate.  His mother decided that if things didn’t change for her son, he would most likely end up in the court system.  So she spent every day at school with him, running intervention for him at recesses and lunch time, until he went into middle school.  For most parents?  This is not an option.

In high school, he lived in a densely populated area with 3 different high schools.  When he screwed up socially so bad he hated to show up in class, he went anyway, encouraged by the fact that in the fall, he could change schools.  He did.  Three times.

For most children, this is not an option.

Most children, no matter how traumatized at school, do not go on a shooting rampage.

I cannot even imagine the emotional pain of being beaten up by your peers for 12 years with no relief in sight.  Of having to show up every day in class feeling at best, out of place, and at worst, victimized, despised and rejected.

I don’t know if this was the case with Adam?  Probably I am way off base. Reading Adam Langham’s blog on typical shooters, I believe bullying may or may not have been a factor in the situation.

As Shannon A. Thompson points out in her blog*, “Even though I personally believe we cannot logically understand the illogical (situations like this), I still think we can try and/or cope.”

There has to be some logic to these attacks and we have to figure it out before more children die.

*http://shannonathompson.com/2012/12/14/sandy-hook-elementary-school-shooting/

** not his real name.

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How to Prevent a Massacre? Somebody Needs to Figure It Out.

Twenty-seven people dead today, mostly children.  It is impossible to comprehend the horror of your small child being shot down like an animation in a video game.

Some news sources are suggesting the shooter was developmentally disabled.  (http://www.dailymail.co.uk/news/article-2248197/Sandy-Hook-elementary-shooting-29-dead-including-22-children-Connecticut-school.html)

Gun control advocate wearing badge against gun violence outside the White House. AP Photo.

How does this kind of rampage become possible???  Here are some thoughts on that:

  • Being able buy a gun, ammunition and liquor at the same checkout.

  • Playing video games 4 to 16 hours a day that feature human targets as scoring incentives.

  • Undiagnosed/untreated learning and/or emotional disabilities.

  • Lack of meaningful involvement in both household and community routine.

Or perhaps it was none of the above.

Maybe it was just the comprehension of life as another ‘game’ and the perpetrator was just looking to place as high scorer.

Interesting how these shooters include suicide in the plan.  I say ‘plan’ because what they do takes time and preparation: acquiring weaponry, ammunition.  Choosing a day, time and place, along with point of entry.  Not to mention psyching oneself up for the event.

Are there no warning signs?  No behavioural clues?

Can’t anyone tell us what to look for?

Who should have known this was about to happen?  Were his parents aware of his weapons cache?  Did people know this man was a ticking time bomb?

Is it really true that nothing can be done until somebody gets hurt??

 

 

 

 

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