Category Archives: Autism Spectrum

Which is more limiting? The Autism Label? Or Our Parenting?

Temple Grandin, whom I greatly admire,  refers to parenting as a “major source of therapeutic momentum”.  But she adds, when children are diagnosed on the autism spectrum, parents may not have enough expectations for their children.

 

They bring the child through school to graduation, but in the meantime, they have not given the child the kind of experience that teaches them life skills, leaving the graduate either unemployed or under-employed.

Autistic children need to learn how to work, Grandin asserts.  They need to learn basic coping skills, like how to shop, how to order food in a restaurant.  Showing up on time, being responsible for a task outcome, these are skills that are needed in order to learn how to be on the job.

 

That’s why I personally feel that involving kids on the autism spectrum in some kind of volunteer activity, where they must show up regularly, and perform expected tasks, is invaluable to today’s kids, autistic or not.

 

As a volunteer, they must learn to be courteous (a missing factor in today’s world, Grandin laments) and to be reliable, to learn certain work routines and to cope with organizational structures.

As a volunteer, they will also meet retired people who have similar interests and who can mentor them.

The best part?  The child can choose the type of organization he/she wishes to volunteer with and select from a schedule of available days and times those which would be most suitable for them.

These kinds of situations force spectrum kids to interact with others, and Grandin says to insist on social interaction for your child is not only desirable, but necessary if you want him to succeed.

 

“The skills that people with autism bring to the table should be nurtured, for their benefit and for society’s.”  That’s why Grandin believes parents must help their children get out into the work world, learn coping skills and the basics of social etiquette.

As parents, we either help, or hinder.  While we cannot help how children are viewed by others, our most important work is in how we encourage our children to see themselves.

 

Quotes from: http://www.templegrandin.com/

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Autism Spectrum Children Over-Protected: Temple Grandin

The main thrust of personalities on the autism spectrum is social awkwardness, Temple Grandin, an autistic scientist, best-selling author and public speaker maintains.  Her most recent book, “The Autistic Brain” is the topic of her speech available at  www.chicagohumanities.org.

“It’s like our brains have been programmed with all the social circuitry left out.” Grandin says.  “Who do you think invented the spear?”  She asks.  Certainly not those social types sitting chatting around the fire!

 

But Grandin is concerned that children today are allowed to become recluses in their bedrooms or the basement.  They are over-protected, she asserts, and as a result, they become adults on welfare sitting home playing video games.

 

Because kids on the autism spectrum are socially awkward, Parents may tend to protect them from social situations, allowing the children to avoid all participation. The problem as Grandin sees it is that as parents, we are not pushing our autistic children hard enough.  Listening, I can hear that Grandin is looking back at tasks she was made to do as a child which she dreaded at the time.  Now, however, she sees the value in her mother’s determination.

 

For instance Grandin’s mother forced Temple to play hostess at her cocktail parties, to take on family tasks and to visit relatives independently each year.  Nowadays, these daily routines are missing.  Grandin mourns the loss of paper routes which taught children how to work, and chores which taught children basic skills like cooking and sewing.  Grandin also regrets the loss in some schools woodwork and metalwork classes.  These lessons taught not only basic skills, but also practical problem solving and resourcefulness.

 

The solution?  Autistic children need their boundaries pushed.  Her message is that children need mentors and to have that, they must socialize.  Common interests are the threads that bind autistic people with others socially.  Her suggestion?  Retired people who work with the skill-sets that interest your autistic child are the kind of people who could be good mentors for your child.

 

Her talk is interesting and thought-provoking. For anyone with autism spectrum issues in the family, it is well worth the hour spent listening.  Her video is available at: http://chicagohumanities.org/events/2013/animal/temple-grandin?gclid=CjwKEAjw68ufBRDt0Zmrn4W_8AwSJADcjp1c8n1Utyy3mnJeYdd940H2AEKV1F2Imhly0MZsHZr5SxoChdfw_wcB

A shorter version can be found on You Tube at https://www.youtube.com/watch?v=MWePrOuSeSY.

 

 

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Ten Benefits of Volunteer Service From An Aspie’s Point of View.

Volunteer Services are a great way to prepare for work in the real world.  Volunteering can be a sort of head start program for Aspies.  Here’s why:

1. It gets you out of the house and interacting with people in a positive way that benefits you and your community.

2. It’s a non-threatening way of finding out what kind of work you like, what kind of hours you can handle, and how long you can stand to be part of a work place interaction.

3. If you don’t like it, you can quit.  You will still give notice so that someone can cover your shifts, but if you find the co-workers snarky, or the clientele is too much for you to handle, well, no harm done.

4. You will learn to schedule your responsibilities.  You have to make a commitment.  You have to show up when you say you will.  You have to be good at what you say you are good at.  You have to know that you can get there  (public transit, walking or bicycling) on your own.

5. You will learn to be reliable and punctual.  You will get good references if you do,.

6. You will learn to work with other people of varying ages, professions and education levels.  You will become part of a team.  You will learn how to interact with them in a non-abrasive way.

7. You will learn to understand heirarchy–how people rank in an organization, and how they fit together.

8. You will learn to follow orders–to listen carefully, to ask questions if you don’t understand or are not sure of what is being asked of you, and to find out what special tools or equipment is to be used in the carrying out of these orders.

9.  You will develop different skills, to varying degrees of competence.  These skills do count on a resume.

10.  You will experience limited rejection–most organizations are more than happy to greet new volunteers.

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What Do Aspies Need From Their Parents? Stephen Shore’s Success Story

 

 

In my book, Unforgiving, Memoir of an Asperger Teen, I often express the feeling of being disconnected from the rest of my family and my peers.

In the 1960’s, there was no diagnosis for Asperger’s.  My parents couldn’t figure out what was “wrong” with me.  In their eyes, much of my behaviour was inappropriate.  I resoponded differently to social situations and learning environments than my siblings.  This sense of being “wrong” while all too common for people with Asperger’s, does not have to be.

 In the introductory interview, Stephen Shore describes “the most important thing about my parents”, which is that they accepted him for who he was, and yet at the same time realized that he would face a number of challenges in his journey toward a normal life.

Many of us do not have parents who have this understanding.  Some of us have parents who are not educated enough or financially positioned to offer us the kind of interventions and therapies that Stephen Shore enjoyed.  Some parents are just too drained, emotionally and physically to offer us the support we need.

So we must learn to love and accept ourselves.  Understand this–we can make friends, be comfortable with some people, sincerely listen, pleasantly respond.

And parents please understand, whatever else you do, accepting your child for who they are is the first step on the road to your child’s integration into society.

Yours truly,

Margaret Jean.

 

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For Adults with Asperger’s: Overcoming Obstacles to Getting That Job…

Famous people with Asperger’s give us hope….

80% of grown-ups with Aspergers do not have full-time jobs.

This alarming statistic comes from the webpage, “My Asperger’s Child”.  In a recent article, the authors maintain the reason behind this statistic is not the lack of education or intelligence, but the lack of social skills which would allow employees with Asperger’s to perform their tasks in a “socially acceptable” manner.

“Countless studies show individuals would rather have pleasant and personable co-workers than a co-worker who is always right,” the authors point out.

They conclude that people with Aspergers must compensate for their lack of social competence by “making themselves so good in a specialized field that individuals will be willing to “buy” their skill even though social skills are poor”.

They go on to state that Aspies “need to learn a few social survival skills,” but situating themselves in work groups that are highly specialized is what these authors see as the real solution.  In their minds, Aspies would have more access to social relationships involving work colleagues because of very specific work-related interests.

While I do consider this good advice, I also maintain that working hard at learning social skills is equally important.  There are so many books, videos and online lectures on the subject…Let us do our best in both arenas.

Yours truly,

Margaret Jean.

Read more at: http://www.myaspergerschild.com/2010/10/best-and-worst-jobs-for-aspergers.html
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Office Etiquette: Humour Has It’s Place…

In my book, “Unforgiving, Memoir of an Asperger Teen”, I talk about finding myself in an unfamiliar environment on at least two occasions.  If I had known the appropriate etiquette, I could have been spared much embarrassment.  So to save you, my friends, from suffering the same awkward moments at work, I’m offering you these Office Behavior Etiquette Tips:

Choose humor over swearing.

When conversing, give co-workers a respectable distance of 15 inches.

Smile often and acknowledge them as a sign of respect. 

Cell Phones:

Screen your calls using caller ID.  Set your phone to vibrate and let voice mail pick up.

Anticipate potential callers and call them first — before work.

Never answer your phone when you’re in a meeting.  If it’s life and death urgent, leave the meeting.  Go out of the room, and speak quietly if you really must take the call.

Don’t make your phone visible on a desk or a lunch table.

When you do eat with others, chew wisely and while they are talking instead of when you are talking.

These rules of office etiquette come from:   http://ca.askmen.com/money/professional_150/161_professional_life.html

Yours truly,

Margaret Jean.

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Employers and Autism: Why Would I Hire a Person With Asperger’s??

Want the best person for the job?  Someone focused, methodical, honest and reliable?  You could be looking for someone on the autism spectrum.

According to a bulletin from the National Autistic Society Northern Ireland and the Department for Employment and Learning (N. Ireland), people on the autism spectrum have some stellar qualities to offer.

“People with autism can make effective and highly valued employees,” the article begins.

“As is the case with all employees, it’s important to match the person’s particular skills to the requirements of the post.”

“People with autism are often very focused and have considerable skills in specific areas.”

“Some of the transferable skills include: attention to detail, a methodical approach, strong research skills,  good long term memory and excellent record-keeping.”

For more information on this topic, see:  http://www.equalityni.org/archive/pdf/Employingpeoplewithautism.pdf

Why not hire a person with Asperger’s?

Yours truly,

Margaret Jean.

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Asperger’s and Autism: Disorder? Disability? Or Difference?

While some folks out there see autism and Asperger’s as disabilities or disorders, while they are busy searching for cures, others like Dr. Simon Baron-Cohen of Cambridge University and Dr. Jim Tanaka of the University of Victoria, BC see these syndromes as conditions.  Conditions that do not necessarily call for cures.

While some disabilities are created by the syndrome, certain talents often also result.  One examples of this theory is Temple Grandin, a brilliant animal behaviourist with autism.

Baron-Cohen gives the further example of Einstein who said, “I do not socialize because it would distract me from my work.”

He also points out that people on the spectrum are far more interested in how systems work than in social cognition.

Jim Tanaka has done work on facial recognition, and developed new games as a result of his research that help ASD children with social interaction.

He encourages everyone to look at ASD not as a disability but as a difference integral to one’s personality.

I agree!

Yours truly,

Margaret Jean.

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What Is Normal? Non-verbal Autistic Child: Siblings in Autism

Click on the video!  This is a fascinating insight into family life when one child is autistic.

The non-autistic sibling gives her point of view of the family dynamic and her relationship with her brother, which gives the video a unique focus.

The father is Mike Lake, an MP from Edmonton.

Enjoy!

Yours truly,

Margaret Jean.

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About Autism Syndrome Disorder: Did You Know….

Bev & I blogMy adult daughter, who is diagnosed with Asperger’s, came home one day and told me how surprised she was to find that most people when they enter a room?  Look at the people.

“I always look at the layout of the room,” she explained, “how the seats are laid out, where the doors are, where the teacher is working from, what equipment is in the room, where the windows are.  I never thought to look at the people.”

This is an example of what Dr. Jim Tanaka of UVic says about difference in perception between those with and those without ASD.  It also illustrates Simon Baron-Cohen’s point that kids on the spectrum find systems more fascinating than people.

Other problems of perception happen because of focus.  At SFU, I was an English Lit major.  It took me ten years to get my degree as a mature student.  I can’t believe in all that time, I never realized that SFU has an Autism and Developmental Disorders Lab.  I was totally focused on English classes, which were in different wings than the sciences.

I now know that lab is headed by Dr. Grace Iarocci, and its current focus is the way in which visual perception is affected both negatively and positively by processes of attention.

This year, they’re co-hosting three community events about ASD kids, their families and the quality of life.  The idea is to open a discussion about quality of life issues for ASD  individuals, care givers, professionals and families.  It’s free, open to the public.  Watch their website for scheduling:  http://autismlab.psyc.sfu.ca/events

Dr. Iarocci apparently has influence with the government and bodies determining ASD funding, so please do attend and voice your opinion loud and clear.

Yours truly,

Margaret Jean.

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